Preliminary Draft Methodology Report: Our Questions, Our Decisions: Standards for Patient-centered Outcomes Research – Patient-Centered Outcomes Research Institute – published for public comment 23 July 2012

Posted on July 24, 2012. Filed under: Patient Participation, Research | Tags: , , |

Preliminary Draft Methodology Report: Our Questions, Our Decisions: Standards for Patient-centered Outcomes Research – Patient-Centered Outcomes Research Institute – published for public comment 23 July 2012

Extract from the executive summary:

“In this first report, the Methodology Committee puts forward 60 standards to guide patient-centered outcomes research (Appendix A). The initial range of topics was chosen to reflect areas in which the Committee believed that there were either substantial deficiencies or inconsistencies in how the methods were applied in practice, or for which there was specialized knowledge in how best to conduct research that had not been effectively disseminated.(1-3)”

… continues on the site

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Patient-Centered Outcomes Research Institute [US] – website link

Posted on June 19, 2012. Filed under: Patient Participation, Research | Tags: , |

Patient-Centered Outcomes Research Institute [US] – website link

“The Patient-Centered Outcomes Research Institute (PCORI) is authorized by Congress to conduct research to provide information about the best available evidence to help patients and their health care providers make more informed decisions. PCORI’s research is intended to give patients a better understanding of the prevention, treatment and care options available, and the science that supports those options.”

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