Care for people in the last days and hours of life – the Leadership Alliance for the Care of Dying People – 14 January 2014

Posted on January 20, 2014. Filed under: Palliative Care | Tags: |

Care for people in the last days and hours of life – the Leadership Alliance for the Care of Dying People – 14 January 2014

“The Leadership Alliance for the Care of Dying People (LACDP) has published an interim statement, which gives an update on its work to date following the publication of the independent report, More Care, Less Pathway, on the Liverpool Care Pathway (LCP).

The independent review concluded that many of the issues around the LCP were that it had come to be regarded and used as a generic protocol or a tick box exercise. Therefore, the Alliance will not produce a replacement for the LCP. Instead, the Alliance aspires to a shared vision for care focused on a set of agreed outcomes and guiding principles to support individualised care for dying people. This will help to ensure that the way in which a dying person is cared for, including the goals and other key aspects of their care, will be focused around the individual, in line with their needs and preferences; and developed and delivered in consultation with them, wherever possible and/or their family.”

… continues on the site

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Public Health England and NHS Improving Quality announce changes to the End of Life Care Co-ordination Information Standard – 10 January 2014

Posted on January 14, 2014. Filed under: Health Informatics, Palliative Care | Tags: , , |

Public Health England and NHS Improving Quality announce changes to the End of Life Care Co-ordination Information Standard – 10 January 2014

“The standard specifies the core content to be held in Electronic Palliative Care Co-ordination Systems (EPaCCS), or paper-based care co-ordination systems. Evidence is emerging that the standard improves care co-ordination, supporting more people to die in their place of choice (What we know now 2013, PHE National End of Life Care Intelligence Network).

Some changes have been made to the standard following feedback from implementers and key stakeholders and these have recently been published by the Information Standards Board for Health and Social Care. They include:

new data item to record consent status
data item to record actual place of death moved to core data set
data item to record date of death
subset of codes now specified for the disability data item
additional codes for the data item on informal carer, prescription of palliative care medication and formal carers involved in care
data item for main informal carer to be mandatory for completion
removal of non-specific codes for primary end of life care diagnosis
removal of Liverpool Care Pathway (LCP) from the data item that records ‘End of Life Care Tools in Use’ ”

… continues on the site

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The provincial end-of-life care action plan for British Columbia – March 2013

Posted on April 3, 2013. Filed under: Palliative Care | Tags: |

The provincial end-of-life care action plan for British Columbia – March 2013

Extract from the executive summary:

“This action plan is intended to guide health authorities, physicians, health care providers, and community organizations in planning integrated primary and community care services. It supports quality hospice, palliative and end-of-life care services across British Columbia with a focus on supporting individuals with life-limiting conditions to remain at home in their community, reducing the need for hospital or emergency department visits, and improving coordination of care across all settings.

Based on leading practices for managing chronic and life-limiting conditions, the action plan incorporates a population needs-based approach to palliative care, which recognizes that the health care needs of individuals vary over the course of a life-limiting illness. With this in mind, end-of-life care is most effective in meeting the needs of a patient with complex needs through an integrated team approach that includes the patient, patient’s family, family physician, specialists, nurse practitioners, community health teams and others.”

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Tried and tested End of Life Care Modelling Tools launched today – NHS National End of Life Care Programme – 22 May 2012

Posted on May 28, 2012. Filed under: Health Mgmt Policy Planning, Palliative Care, Workforce | Tags: , |

Tried and tested End of Life Care Modelling Tools launched today – NHS National End of Life Care Programme – 22 May 2012

“Eight early adopter sites across England have worked with the National End of Life Care Programme to trial a set of modelling tools to support end of life care commissioners and planners.

The updated tools are now freely available on the National End of Life Care Intelligence Network website together with a range of supporting materials, including workbooks and case studies from the early adopters.

There are three modelling tools:

The Cohort Model that identifies the end of life care needs of their population over a 10-year period
The Skills for Health Functional Analysis tool, which assesses workforce skills required to ensure quality end of life care provision
The Yorkshire & the Humber Co-Design Model, which assesses how many people dying in hospital could reasonably end life in an alternative care setting and provides costings for Alternative Care Pathways.

Together these tools:

provide analytical support to organisations aiming to achieve the vision of the National End of Life Care Strategy and the NHS QIPP agenda
provide commissioners and planners with a better understanding of local need for end of life care services and the competences required in the workforce and
model the expected impact of service redesign.

To view the tools, go to End of Life Care Models.”

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What do we know now that we didn’t know a year ago? New intelligence on end of life care in England – May 2012

Posted on May 9, 2012. Filed under: Palliative Care | Tags: |

What do we know now that we didn’t know a year ago? New intelligence on end of life care in England – May 2012

This report highlights areas where improvements have been made as well as where further action is needed to improve care for people who are dying. The publication is divided into 16 categories ranging from place of care and death to latest trends in different settings, different disease types, costs, quality of care, workforce and public attitudes.

Press release

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Getting it right: End of life care in advanced kidney disease – NHS Kidney Care – March 2012

Posted on March 16, 2012. Filed under: Nephrology, Palliative Care | Tags: |

Getting it right: End of life care in advanced kidney disease – NHS Kidney Care – March 2012

“This document brings together the experiences and learning from three project groups that have been working over the last two years to implement the framework for end of life care in advanced kidney disease. It also addresses the data items that are associated with managing end of life care.”

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NICE publishes new end of life care quality standard – 30 November 2011

Posted on December 9, 2011. Filed under: Palliative Care | Tags: , |

NICE publishes new end of life care quality standard – 30 November 2011

“Around half a million people die each year in England and the issues considered to be important at this time can differ enormously from one person to another. Preparation for death, communication with carers and physicians that is sensitive and responsive, and being treated with dignity and respect are often deemed significant.

This new quality standard includes 16 statements for the care of adults (18 years and older) with advanced, progressive, or incurable conditions who are approaching the end of their life and are expected to die within the next 12 months. The end of life definition also includes adults with existing conditions who are at risk of dying from a sudden, acute crisis in their condition, or those with life-threatening acute conditions caused by sudden catastrophic events. The standard also covers support for the families and carers of such people.

The quality standard statements include:”

… continues on the site

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Preferred Priorities for Care (PPC). Support sheet 18 – National End of Life Care Programme (NHS) 5 September 2011

Posted on September 9, 2011. Filed under: Palliative Care | Tags: , |

Preferred Priorities for Care (PPC). Support sheet 18 – National End of Life Care Programme (NHS) 5 September 2011

“This support sheet provides a description of Preferred Priorities for Care, a tool for the discussion and recording of end of life care wishes and preferences.”

 

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Act & early to avoid A & E – End of Life Care – 18 July 2011

Posted on August 10, 2011. Filed under: Palliative Care | Tags: |

Act & early to avoid A & E – End of Life Care – 18 July 2011

“The purpose of this briefing is to help you to identify the immediate priority actions to commission effective end of life care. “

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VOICES redesign and testing to inform a National End of Life Care survey – NHS – July 2011

Posted on August 10, 2011. Filed under: Palliative Care, Patient Participation | Tags: |

VOICES redesign and testing to inform a National End of Life Care survey – NHS – July 2011

“The End of Life Care Strategy made a commitment to build on the VOICES (Views of Informal Carers – Evaluation of Services) work to support the development of a national survey of the bereaved which would capture invaluable information about the quality of care provided to the deceased. The aim of this report is to adapt and test VOICES as a measure of the quality of end of life care as well as investigating whether recruitment strategy can impact upon response rates in VOICES surveys. It also hopes to provide guidance for the planning and execution of future VOICES surveys.”

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Guidance for staff responsible for care after death (last offices) – NHS National Nurse Consultant Group (Palliative Care) – April 2011

Posted on April 14, 2011. Filed under: Nursing, Palliative Care | Tags: |

Guidance for staff responsible for care after death (last offices) – NHS National Nurse Consultant Group (Palliative Care)

Developed by the National End of Life Care Programme and National Nurse Consultant Group (Palliative Care)
The Royal College of Pathologists and the Royal College of Nursing

“The nurses’ role at the end of life extends beyond death to provide care for the deceased person and support to their family and carers. The physical care given by nurses following death in hospitals has traditionally been referred to as ‘last offices’. However, in this guidance we refer to ‘care after death’, a term more befitting of our multi-cultural society.”   …continues

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Bereavement care services: a synthesis of the literature – University of Nottingham, for Department of Health – 26 January 2011

Posted on January 28, 2011. Filed under: Palliative Care | Tags: , |

Bereavement care services: a synthesis of the literature – University of Nottingham, for Department of Health – 26 January 2011
Pages: 73

“This report sets out the findings of a literature review on bereavement services conducted by the University of Nottingham.  The review was commissioned to inform future work on bereavement care, as part of the implementation of the End of Life Care Strategy. “

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The transformative power of effective facilitation – practical steps to making a difference in end of life care – 2010

Posted on August 25, 2010. Filed under: Palliative Care | Tags: |

The transformative power of effective facilitation – practical steps to making a difference in end of life care

“Report of a conference to launch the National End of Life Care Programme Facilitators Network June 29th 2010, Mary Ward House, London.

This report highlights the launch of the facilitators network and the objectives and thoughts behind the development of the network. This report is aimed at end of life care facilitators who attended the event, those who were unable to attend and those who may be thinking of joining the network. The National End of Life Care Programme (NEoLCP) will also share the report with the Strategic Health Authority end of life care leads to promote the network and raise awareness of facilitators working within their region.”

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Variations in place of death in England: inequalities or appropriate consequences of age, gender and cause of death? – NHS National End of Life Care Programme – August 2010

Posted on August 20, 2010. Filed under: Palliative Care | Tags: , , |

Variations in place of death in England: inequalities or appropriate consequences of age, gender and cause of death? – NHS National End of Life Care Programme – August 2010

This report reveals big variations in the percentage of deaths that occur in hospital – both between the English regions and at a local authority level. It also shows that people on low incomes are more likely to die in hospital, with 62% of deaths amongst people in the most deprived quintile of the population occurring in hospital. Amongst the most affluent fifth of the population the figure is 55%. The report cautions however that these inequalities might reflect a greater incidence of diseases requiring hospital care at the terminal stage amongst people in lower socio-economic groups.

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