New perspectives and approaches to understanding dementia and stigma – Medical Research Council [UK] – 24 October 2014

Posted on October 29, 2014. Filed under: Aged Care / Geriatrics | Tags: , |

New perspectives and approaches to understanding dementia and stigma – Medical Research Council [UK] – 24 October 2014

“The social stigma which surrounds dementia is impeding early diagnosis, care and research into the disease, according to a new report championed by the Medical Research Council (MRC).

The report, New perspectives and approaches to understanding dementia and stigma, published by the think tank International Longevity Centre UK (ILC-UK) in collaboration with the MRC, Alzheimer’s Research UK, Alzheimer’s Society and supported by the drug company Pfizer, shines a light on the impact the fear around dementia has on those living with the condition, their families and carers, which prevents the research community capturing a full picture of the disease.

According to data in the report, people over the age of 55 fear being diagnosed with dementia more than any other condition and at least 1 in 4 people hide their diagnosis, citing stigma as the reason.”

… continues on the site

How not to solve the dementia crisis – £55 lollipops for GPs – Guardian – 29 October 2014

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Preventing dementia: a provocation – International Longevity Centre – UK (ILC-UK) – 14 July 2014

Posted on July 15, 2014. Filed under: Aged Care / Geriatrics, Preventive Healthcare | Tags: |

Preventing dementia: a provocation – International Longevity Centre – UK (ILC-UK) – 14 July 2014

How can we do more to prevent dementia, save lives and reduce avoidable costs?

“This report highlights how we can do more to prevent dementia, save lives and reduce avoidable costs.

A new Provocation launched today from the ILC-UK and Improving Care explores potential savings to the state if we were able to intervene successfully on the risk factors that cause dementia- these include physical activity, smoking, obesity and depression.

The authors of the report have modelled the impact of matching best practice interventions from global case studies on reducing six risk factors for dementia.

We estimate that over a 27 year period (2013-2040) this could prevent nearly 3 million people developing dementia in the UK – and would reduce the costs to the state in the UK by £42.9 billion between now and 2040 (minus any associated costs of intervention).

For example, if we managed to successfully reduce depression by 22.5% by 2040 (best practice intervention) this could prevent 22,000 dementia cases and save the state £308million. Similarly, if we managed to reduce type 2 diabetes by 58% through intensive lifestyle interventions, through weight reduction and exercise, we could potentially prevent 40,000 people developing dementia by 2040 and save the state £560million.

This Provocation links to the key messages of a study published in the Lancet Neurology today that argues one in three cases of dementia could be avoided by changes in lifestyle.”

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What to Do About Dementia? Policy Options for Crucial Long-Term Care – RAND – 2014

Posted on June 25, 2014. Filed under: Aged Care / Geriatrics | Tags: , |

What to Do About Dementia? Policy Options for Crucial Long-Term Care – RAND – 2014

“Millions of Americans already struggle with dementia, a degenerative cognitive condition that costs the United States billions of dollars annually, more than cancer or heart disease. As the nation’s population grows grayer, these numbers will only soar. RAND researchers have developed a national blueprint to help decisionmakers improve long-term services and supports that are crucial for those with dementia and those who care for them.”

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Dementia care in the acute hospital setting: issues and strategies – Alzheimer’s Australia – 16 June 2014

Posted on June 18, 2014. Filed under: Acute Care, Aged Care / Geriatrics | Tags: , |

Dementia care in the acute hospital setting: issues and strategies – Alzheimer’s Australia – 16 June 2014

ISBN 978-1-921570-37-7

Extract from the executive summary

“Australia is facing a huge healthcare challenge with an ever increasing demand for appropriate acute care services for people with dementia. Yet, people with dementia still struggle to get the care they need in the acute care setting. People with dementia experience unacceptably worse clinical outcomes, longer lengths of stay as well as a higher likelihood for readmission compared to people without dementia at a high cost to the health care system.1

With good care, the costs of dementia care in hospital may be the same but the outcomes for people with dementia would be improved leading to a more efficient use of health care spending.

Alzheimer’s Australia held a Dementia Care in Hospitals Symposium in Sydney on the 29th of April 2014, where the most recent Australian research in dementia care in hospitals was presented and discussed by leading researchers and experts. This included latest findings on current dementia care as well as interventions and strategies to improve the quality of care. This report provides a summary of the issues and strategies that were discussed at this Symposium.”

 

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Good practice in the design of homes and living spaces for people living with dementia and sight loss – Thomas Pocklington Trust – June 2014

Posted on June 17, 2014. Filed under: Aged Care / Geriatrics, Ophthalmology | Tags: , |

Good practice in the design of homes and living spaces for people living with dementia and sight loss – Thomas Pocklington Trust – June 2014

New research shows that good design improves the independence of people with dementia and sight loss – news release

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RCN development programme: transforming dementia care in hospitals – evaluation report – 21 May 2014

Posted on May 22, 2014. Filed under: Aged Care / Geriatrics | Tags: , , |

RCN development programme: transforming dementia care in hospitals – evaluation report – 21 May 2014

News release: Invest in nurse leaders to improve dementia care – RCN – 21 May 2014

“The RCN has today published a report into a major year-long programme which has highlighted the importance of investing in nurse leaders and dementia nurse specialists to improving dementia care.

The results of the programme, which was funded by the RCN Foundation, have been published at the Transforming Dementia Care in Hospitals conference.

The programme involved nine NHS trusts developing innovative ways to improve dementia care in hospitals – ranging from trust-wide education programmes, improving individualized care and supporting family carers.”

… continues on the site

 

 

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Care and management of younger and older Australians living with dementia and behavioural and psychiatric symptoms of dementia (BPSD) – Australian Senate Community Affairs References Committee – March 2014

Posted on March 27, 2014. Filed under: Aged Care / Geriatrics, Mental Health Psychi Psychol | Tags: |

Care and management of younger and older Australians living with dementia and behavioural and psychiatric symptoms of dementia (BPSD) – Australian Senate Community Affairs References Committee – March 2014

ISBN 978-1-74229-944-0

 

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The Use of Restraint and Psychotropic Medication in People with Dementia – Alzheimer’s Australia – 26 March 2014

Posted on March 26, 2014. Filed under: Aged Care / Geriatrics | Tags: , |

The Use of Restraint and Psychotropic Medication in People with Dementia – Alzheimer’s Australia – 26 March 2014

“Up to 80% of people with dementia and nearly half of people in residential aged care facilities are receiving psychotropic medications that in some cases are inappropriately prescribed, a report released today by Alzheimer”s Australia has revealed.

The report, The Use of Restraint and Psychotropic Medication in People with Dementia, provides an evidence-based review of the prevalence of the use of restraint, and the potential negative consequences and legal issues surrounding the use of psychotropic medication and physical restraints in people with dementia.”
http://www.fightdementia.org.au/common/files/NAT/20140321_Publication_38_A4_print%20version_Web.pdf

Up to 80 per cent of dementia patients in aged care facilities restrained with psychotropic drugs: report – ABC News – 26 March 2014

“A new study produced by Alzheimer’s Australia suggests up to 80 per cent of dementia patients in aged care facilities are being treated with psychotropic drugs.

The report, to be released today, suggests only one in five dementia patients receive any benefit from taking such medication.

Alzheimer’s Australia says the use of drugs in nursing homes is excessive and it has called for reform of the sector.”

… continues on the site

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New Zealand Framework for Dementia Care – NZ Ministry of Health – 21 November 2013

Posted on December 18, 2013. Filed under: Aged Care / Geriatrics | Tags: |

New Zealand Framework for Dementia Care – NZ Ministry of Health – 21 November 2013

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Dementia: A state of the nation report on dementia care and support in England – 29 November 2013

Posted on December 18, 2013. Filed under: Aged Care / Geriatrics | Tags: |

Dementia: A state of the nation report on dementia care and support in England – 29 November 2013

“This report sets out what is known about dementia care, support and research. It highlights where improvements are being made and where progress can be seen – it also shows where improvements are needed, including where better data is necessary.

It assesses the scale of the challenge of dementia and also looks at:

prevention
diagnosis
living with dementia
dementia education and training
dementia friendly communities
research

The report supports an interactive map where people can see data about dementia care in their area and across the country.”

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G8 Dementia Summit Declaration – 11 December 2013

Posted on December 13, 2013. Filed under: Aged Care / Geriatrics | Tags: |

G8 Dementia Summit Declaration – 11 December 2013

Full text of the declaration

“Introduction

We, the G8 Health Ministers, met at the G8 Dementia Summit in London on 11 December 2013 to discuss how to shape an effective international response to dementia.

We acknowledge the on-going work occurring in our countries and globally to identify dementia as a major disease burden and to address issues related to ageing and mental health, including the World Health Organisation’s 2012 report, Dementia – A Public Health Priority. Building upon the significant research collaborations that exist between our countries and our multilateral partners will strengthen our efforts and allow us to better meet the challenges that dementia presents society.

We recognise that dementia is not a normal part of ageing. It is a condition that impairs the cognitive brain functions of memory, language, perception and thought and which interferes significantly with the ability to maintain the activities of daily living. We also acknowledge that dementia affects more than 35 million people worldwide, a number that is expected to almost double every 20 years.

We note the socio-economic impact of dementia globally. Seventy per cent of the estimated annual world-wide cost of US$604 billion is spent on informal, social and direct medical care. Yet nearly 60 per cent of people with dementia live in low and middle income countries so the economic challenge will intensify as life expectancy increases across the globe. These costs are expected to increase significantly if therapies to prevent dementia and improve care and treatment are not developed and implemented. We recognise the need to strengthen efforts to stimulate and harness innovation and to catalyse investment at the global level.

Therefore, and in accordance with national, sub-national and local responsibilities, we commit ourselves to:”

… continues on the site

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Dementia self-assessment framework – Department of Health [England] – 16 October 2013

Posted on October 18, 2013. Filed under: Aged Care / Geriatrics, Nursing | Tags: |

Dementia self-assessment framework – Department of Health [England] – 16 October 2013

“The self-assessment framework was created by nurses and care staff to compare current dementia care with the best practice criteria.”

… continues on the site

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Building dementia-friendly communities: A priority for everyone – Alzheimer’s Society [UK] – 2013

Posted on September 6, 2013. Filed under: Aged Care / Geriatrics | Tags: , , |

Building dementia-friendly communities: A priority for everyone – Alzheimer’s Society [UK] – 2013

Executive Summary

Media release

“In order for dementia-friendly communities to succeed, the views and opinions of people with dementia and their carers must be at the heart of any considerations or decisions. Building dementia-friendly communities: A priority for everyone provides evidence of dementia-friendly communities from the perspective of people affected by dementia. It explores the barriers that people face in their community, how they would like to be engaged in their local area and the support they need to empower them to do so. Overall, the report aims to provide guidance to areas that are looking to become dementia-friendly and to provide extra evidence for those already committed to becoming dementia-friendly. New and existing evidence from people with dementia and their carers is collated alongside examples of projects that are making a difference for people with dementia.”

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Improving care for people with dementia: policy – Department of Health (England) – 25 April 2013

Posted on April 29, 2013. Filed under: Aged Care / Geriatrics | Tags: |

Improving care for people with dementia: policy – Department of Health (England) – 25 April 2013

“Issue

There are around 800,000 people with dementia in the UK, and the disease costs the economy £23 billion a year. By 2040, the number of people affected is expected to double – and the costs are likely to treble.”

… continues

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Dementia 2013: The hidden voice of loneliness – Alzheimer’s Society [UK] – 9 April 2013

Posted on April 11, 2013. Filed under: Aged Care / Geriatrics | Tags: , |

Dementia 2013: The hidden voice of loneliness – Alzheimer’s Society [UK] – 9 April 2013

Media release: Majority of people living alone with dementia feel lonely, Alzheimer’s Society reports

 

 

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Dementia: scoping the role of the dementia nurse specialist in acute care – Royal College of Nursing – 25 March 2013

Posted on March 26, 2013. Filed under: Aged Care / Geriatrics, Health Economics, Nursing, Workforce | Tags: , |

Dementia: scoping the role of the dementia nurse specialist in acute care – Royal College of Nursing – 25 March 2013

Media release: More specialist dementia nurses needed, says RCN

“The Royal College of Nursing and the University of Southampton have published a new report that calls for greater support, funding and training for specialist dementia nurses.

The report Scoping the Role of Dementia Nurse Specialists in Acute Care highlights the significant contribution dementia nurse specialists could make in hospital settings.

Research has found that if dementia specialist nurses were properly funded and trained, they could reduce hospital stays for older people by one day on average, saving almost £11,000,000 a year.

The report recommends that there should be at least one whole-time dementia specialist nurse for every 300 hospital admissions for people with dementia.”

… continues

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Dementia care in hospitals: costs and strategies – AIHW – 14 March 2013

Posted on March 14, 2013. Filed under: Aged Care / Geriatrics, Health Economics | Tags: , , |

Dementia care in hospitals: costs and strategies – AIHW – 14 March 2013

“This report estimates the cost of caring for people with dementia in New South Wales hospitals, and presents strategies and practices being implemented in Australia and internationally that might improve outcomes for people with dementia and reduce care costs. The average cost of hospital care for people with dementia was generally higher than for people without dementia ($7,720 compared with $5,010 per episode). The total cost of hospital care for these patients was estimated to be $462.9 million, of which around $162.5 million may be associated with dementia.”

ISBN 978-1-74249-406-7; Cat. no. AGE 72; 109pp.

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Developing supportive design for people with dementia – King’s Fund – 9 January 2013

Posted on January 11, 2013. Filed under: Aged Care / Geriatrics | Tags: , , , |

Developing supportive design for people with dementia – King’s Fund – 9 January 2013

The King’s Fund’s Enhancing the Healing Environment Programme 2009-2012

“Developing Supportive Design for People with Dementia is the latest publication from the EHE programme. It marks the completion of 26 schemes in 23 NHS acute, community and mental health hospitals in England to improve the environment of care for people with dementia.

The Environments of Care for People with Dementia programme was funded by the Department of Health as part of work to support the implementation of the National Dementia Strategy in England. There was tight competition for the available places, and projects were chosen for their ability to reflect the care pathway from diagnosis to end-of-life care.

This publication seeks to provide practical, value-for-money examples to encourage and inspire staff and their organisations to provide an environment of care that better supports people with dementia. As well as case studies with before and after photographs from participating sites, Developing Supportive Design for People with Dementia includes information about the development and evaluation of the EHE assessment tool; overarching design principles for creating a more supportive environment for people with dementia; and a project directory detailing the artists and designers involved in each scheme along with costs involved.”

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A Future State of Mind: Facing up to the dementia challenge – Social Market Foundation – 13 December 2012

Posted on January 4, 2013. Filed under: Aged Care / Geriatrics | Tags: |

A Future State of Mind: Facing up to the dementia challenge – Social Market Foundation – 13 December 2012

ISBN Number: 1-904899-80-3   Nida Broughton, Nigel Keohane and Ryan Shorthouse

“The number of people with dementia is set to rise over the coming years as the UK’s population ages, bringing considerable emotional and financial implications. The Prime Minister has described it as “a national crisis”. Increasing the number of people who are diagnosed early will reap significant benefits for individuals, families and government.

Currently however, the UK has a poor diagnosis rate, with only 41% of people with dementia estimated to be diagnosed. This report draws on in-depth interviews with people with Alzheimer’s and their carers and a wealth of research to identify the barriers to early diagnosis, from a patient and professional perspective. New policies are proposed to better incentivise the health system to diagnose dementia earlier.”

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Modelling the impact of interventions to delay the onset of dementia in Australia – prepared by the Dementia Collaborative Research Centre: Assessment and Better Care at UNSW – 20 November 2012

Posted on November 22, 2012. Filed under: Aged Care / Geriatrics | Tags: |

Modelling the impact of interventions to delay the onset of dementia in Australia – prepared by the Dementia Collaborative Research Centre: Assessment and Better Care at UNSW – 20 November 2012

“A new report commissioned by Alzheimer’s Australia forecasts that three million Australians will develop dementia between 2012 and 2050.

The report, Modelling the impact of interventions to delay the onset of dementia in Australia, was prepared by the Dementia Collaborative Research Centre – Assessment and Better Care at the University of New South Wales. Centre Director, Scientia Professor Henry Brodaty, said that the new statistics provide even more evidence that Australia must invest in dementia research now.”

… continues on the site

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Comparison of Characteristics of Nursing Homes and Other Residential Long-Term Care Settings for People With Dementia – AHRQ – October 2012

Posted on November 9, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

Comparison of Characteristics of Nursing Homes and Other Residential Long-Term Care Settings for People With Dementia – AHRQ – October 2012

Agency for Healthcare Research and Quality [US]

“Structured Abstract

Objectives. To compare characteristics and related outcomes of nursing homes (NHs) and other residential long-term care settings for people with dementia so as to reduce uncertainty when choosing a setting of care for someone with dementia.

Data Sources. We searched MEDLINE®, Embase®, the Cochrane Library, the Cumulative Index to Nursing and Allied Health Literature (CINAHL®), AgeLine®, and PsycINFO® from 1990 through March 23, 2012. We identified additional studies from reference lists and experts.

Review methods. Two people independently selected, abstracted data from, and rated the quality of relevant studies. Given that quantitative analyses were inappropriate because of clinical heterogeneity, insufficient numbers of similar studies, or insufficient or variation in outcome reporting, we synthesized the data qualitatively. Two reviewers graded the strength of evidence (SOE) using established criteria.

Results. We identified 14 studies meeting our inclusion criteria. Generally, studies examined characteristics, structures, and process of care for populations with mild to severe dementia. Ten studies addressed health outcomes (Key Question [KQ] 1), and 10 examined psychosocial outcomes (KQ 2) for people with dementia. No eligible studies examined health or psychosocial outcomes for informal caregivers (KQ 3 and KQ 4, respectively). The studies included four prospective cohort studies, nine randomized controlled trials (RCTs), and one non-RCT. Two studies showed that the use of pleasant sensory stimulation reduces agitation. We found limited evidence on a number of interventions, including protocols for individualized care to reduce pain/discomfort and agitation/aggression and functional skill training to improve function. We found largely no differences across outcomes including function, cognition, depressive symptoms, pain, morbidity, behavioral symptoms, engagement, and quality of life based on residence in an NH or residential care/assisted living (RC/AL), other than increased hospitalization for people with mild dementia in RC/AL compared with NHs and increased restraint use in NHs compared with RC/AL for imminently dying residents.

Conclusions. Overall, we found low or insufficient SOE regarding the effect of organizational characteristics, structures, and processes of care on health and psychosocial outcomes for people with dementia and no evidence for informal caregivers. Findings of moderate SOE indicate that pleasant sensory stimulation reduces agitation. Also, although the SOE is low, protocols for individualized care and to improve function result in better outcomes. Finally, outcomes do not differ between NHs and RC/AL except when medical care is indicated. Additional research is needed to develop a sufficient evidence base to support decisionmaking.”

Zimmerman S, Anderson W, Brode S, Jonas D, Lux L, Beeber A, Watson L, Viswanathan M, Lohr K, Middleton JC, Jackson L, Sloane P. Comparison of Characteristics of Nursing Homes and Other Residential Long-Term Care Settings for People With Dementia. Comparative Effectiveness Review No. 79. (Prepared by the RTI International–University of North Carolina Evidence-based Practice Center under Contract No. 290-2007-10056-I.) AHRQ Publication No. 12(13)-EHC127-EF. Rockville, MD: Agency for Healthcare Research and Quality; October 2012.

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A stronger collective voice for people with dementia – Joseph Rowntree Foundation JRF – 24 October 2012

Posted on October 24, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

A stronger collective voice for people with dementia – Joseph Rowntree Foundation JRF – 24 October 2012

“Can groups provide a stronger collective voice for people with dementia?

A growing number of people with dementia in the UK are becoming actively involved in groups to try to influence services and policies affecting people with dementia. The Dementia Engagement & Empowerment Project (DEEP) was a one-year investigation aiming to highlight groups and projects involving people with dementia. The report offers specific ways forward for organisations wishing to engage with people with dementia. This report found that:

  • There are only a small number of groups led by, or actively involving, people with dementia that are influencing services and policies.
  • ‘Influencing’ work includes national lobbying and meeting with government officials, local lobbying of services, media work, training and education, participating in advisory groups, awareness-raising, and speaking at events.
  • Most groups undertook influencing work alongside peer support and social activities, and were local and relatively informal.
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Dementia guide: commitment to the care of people with dementia in hospital settings – Royal College of Nursing – 9 October 2012

Posted on October 17, 2012. Filed under: Aged Care / Geriatrics, Nursing | Tags: , |

Dementia guide: commitment to the care of people with dementia in hospital settings – Royal College of Nursing – 9 October 2012

Abstract:

“Dementia is a challenge for hospitals. Surveys show that around a quarter of hospital beds are occupied by somebody with dementia; a figure which increases in older people and individuals with a superimposed delirium. This important resource supports the further implementation of the RCN’s five principles for improving the quality of care for people with dementia and enabling the best possible support for their carers. This guide supplements the RCN’s film: Dementia: Commitment to the care of people with dementia in hospital settings.”

Media release

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Creating a dementia-friendly York – Joseph Rowntree Foundation – 4 October 2012

Posted on October 5, 2012. Filed under: Aged Care / Geriatrics | Tags: , , |

Creating a dementia-friendly York – Joseph Rowntree Foundation – 4 October 2012

“What does it take to become a dementia-friendly city?

The York Dementia Without Walls project looked into what’s needed to make York a good place to live for people with dementia and their carers.

Dementia-friendly communities can better support people in the early stages of their illness, maintaining confidence and boosting their ability to manage everyday life. Working with people with dementia, the research team investigated how local resources can be harnessed to this end, provided there is enough awareness.”

… continues on the website

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Dementia in Australia – AIHW – 27 September 2012

Posted on September 27, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

Dementia in Australia – AIHW – 27 September 2012

“In 2011, there were an estimated 298,000 people with dementia. This number is expected to increase markedly over time, with projections suggesting it will reach around 400,000 by 2020 and 900,000 by 2050. Dementia is a leading cause of death, accounting for 6% of all deaths in 2010. Total direct health and aged care services expenditure on people with dementia was at least $4.9 billion in 2009-10.”

ISBN 978-1-74249-349-7; Cat. no. AGE 70; 280pp.

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Assistive technology as a means of supporting people with dementia: A Review – Housing LIN – 24 July 2012

Posted on August 1, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

Assistive technology as a means of supporting people with dementia: A Review – Housing LIN – 24 July 2012

“To coincide with the Housing LIN’s involvement in the Prime Minister’s challenge on dementia, we have published this helpful review of how AT can support people with dementia. Co-authored by Tahir Idris and Steve Bonner, they indicate that awareness of the products, devices and solutions available is still sketchy and variable around the UK and there is almost a ‘postcode lottery’ relating to the quality of AT solutions available to people with dementia due to the varying approaches taken around the country. This paper captures examples of innovation and how AT can help to make a difference.”

… continues on the site

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Breaking new ground: the quest for dementia friendly communities – Housing LIN [UK] – 12 June 2012

Posted on June 19, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

Breaking new ground: the quest for dementia friendly communities – Housing LIN [UK]  – 12 June 2012

“This Housing LIN Viewpoint no 25 – and it’s accompagnying checklist ‘At a Glance’ – examines current policy and practice in relation to delivering housing and neighbourhoods for people with dementia and draws on latest research that considers the role design for dementia can play in achieving the quest for dementia friendly communities.

It offers useful checklists on designing dementia friendly communities and, importantly, seeks to provide a catalyst for developing a robust evidence base in housing with care field thereby ensuring that Housing LIN members are fully engaged when planning, designing and delivering housing that older people want and can break new ground locally.”

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Supporting Dementia Workers – guide to support social care workers working with people with dementia across England – Skills for Care – 21 May 2012

Posted on May 23, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

Supporting Dementia Workers – guide to support social care workers working with people with dementia across England – Skills for Care – 21 May 2012

“Skills for Care have launched the ‘Supporting Dementia Workers’ guide to support social care workers working with people with dementia across England.

The case study based guide is launched to coincide with Dementia Awareness Week which starts today. Skills for Care is backing the campaign that aims to maximise awareness and understanding of Dementia including social care employers and the 1.56 million people who work in the sector.

The number of people with Dementia is expected to grow to 1.7 million by 2051 and Skills for Care estimates that at last half a million extra workers will be needed to help meet their needs.

“Skills for Care is backing National Dementia Week because we need to make sure that everyone who works in our sector has a very clear understanding of the needs of people with dementia” says Skills for Care CEO Sharon Allen.

“We are backing our commitment by launching a user friendly guide that uses real life case studies to help workers in our sector really understand what they can do to make sure that people with Dementia get the best and most dignified care possible.”?

Supporting Dementia Workers is an online resource and can be downloaded from the dementia pages.”

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Funding and performance on clinical guidelines. The cases of dementia and chronic obstructive pulmonary disease – RAND – April 2012

Posted on April 24, 2012. Filed under: Aged Care / Geriatrics, Chronic Disease Mgmt, Clin Governance / Risk Mgmt / Quality, Respiratory Medicine | Tags: , , , |

Funding and performance on clinical guidelines. The cases of dementia and chronic obstructive pulmonary disease – RAND – April 2012

by Emmanuel Hassan, Helen Ridsdale, Jonathan Grant, Susan Guthrie

“In September 2009, the United Kingdom (UK) Medical Research Council, the Wellcome Trust and the Department of Health (England) commissioned RAND Europe to investigate the characteristics of research cited in two UK clinical guidelines: Dementia and Chronic Obstructive Pulmonary Disease (COPD).

The exploratory work is part of an overall drive among funders to understand better how research reaches policy and practice.

The objectives of our exploratory study were to understand the following questions.

What are the characteristics of publications cited in these clinical guidelines?
On those papers with a UK affiliation, who funded the research cited in these clinical guidelines?

This report presents the findings of our work, based on the two guidelines.”

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Dementia and end of life care: implications for people with sensory loss – Thomas Pocklington Trust – April 2012

Posted on April 23, 2012. Filed under: Aged Care / Geriatrics | Tags: |

Dementia and end of life care: implications for people with sensory loss – Thomas Pocklington Trust – April 2012

“Dementia and serious sensory loss are often triggers for admission to a care home, and as more people are surviving into older age, the incidence of dual sensory loss is growing.

Carers and staff supporting people with dual sensory loss combined with dementia need to be confident they can meet these complex needs, and end of life care represents one of their major challenges. Good environmental design can help support best practice in this area.

These are some of the issues that were discussed at a joint event between Pocklington, the Social Care Institute for Excellence and Arup.”

full text of the report Dementia and End of Life Care: implications for people with sensory loss

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Living Longer. Living Better – Department of Health and Ageing – 20 April 2012

Posted on April 20, 2012. Filed under: Aged Care / Geriatrics, Health Policy | Tags: |

Living Longer. Living Better – Department of Health and Ageing – 20 April 2012

“On 20 April 2012, the Prime Minister and Minister Butler unveiled a comprehensive package of reforms to build a better, fairer, more sustainable and more nationally consistent aged care system.

The “Living Longer. Living Better.” aged care reform package provides $3.7 billion over five years. It represents the commencement of a 10 year reform program to create a flexible and seamless system that provides older Australians with more choice, control and easier access to a full range of services, where they want it and when they need it. It also positions us to meet the social and economic challenges of the nation’s ageing population.

The reforms give priority to providing more support and care in the home, better access to residential care, more support for those with dementia and strengthening the aged care workforce. They will be progressively implemented from 1 July 2012 to give early benefits to consumers and providers but also to ensure there is a smooth transition for consumers and providers and sufficient time to adapt and plan ahead of further reform.”

More Choice, Easier Access and Better Care for Older Australians [media release]  – 20 April 2012

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Consumer Engagement in the Aged Care Reform Process. Report fro the Department of Health and Ageing – Alzheimer’s Australia – December 2011 released 9 April 2012

Posted on April 10, 2012. Filed under: Aged Care / Geriatrics, Patient Participation | Tags: , |

Consumer Engagement in the Aged Care Reform Process. Report fro the Department of Health and Ageing – Alzheimer’s Australia – December 2011 released 9 April 2012

“Too many failures in dementia care.

Alzheimer’s Australia has welcomed the release today by the Minister for Mental Health and Ageing, The Hon Mark Butler, of the Alzheimer’s Australia report, Consumer Engagement in the Aged Care Reform Process.

Alzheimer’s Australia thanked the Minister for taking part in a number of the sixteen consultations that were held around the country and the opportunity provided by these consultations to empower people with dementia and family carers to tell their stories.”

… continues

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Report of the first round of the National Audit of Dementia – Royal College of Psychiatrists – 16 December 2011

Posted on December 16, 2011. Filed under: Mental Health Psychi Psychol | Tags: , |

Report of the first round of the National Audit of Dementia – Royal College of Psychiatrists – 16 December 2011
Full report
Executive Summary

Media report from the Guardian – 16 December 2011
Hospital staff ‘lack skills to cope with dementia patients. ‘NHS-funded report says patients receive ‘impersonal’ care and suffer from boredom too often
 
Denis Campbell, health correspondent The Guardian

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The Hospital Dementia Services Project: a study description – AIHW – 24 October 2011

Posted on October 25, 2011. Filed under: Aged Care / Geriatrics | Tags: , |

The Hospital Dementia Services Project: a study description – AIHW – 24 October 2011

“The Hospital Dementia Services Project is an innovative mixed-methods study funded by the National Health and Medical Research Council to investigate how health and aged care system factors influence care outcomes for hospital patients with dementia. People with dementia have comparatively high rates of hospitalisation and longer hospital stays which has an impact on their physical and mental wellbeing. The project focuses on patients aged 50 or over who had an overnight stay in a public hospital in New South Wales during 2006-07. This publication describes the project’s objectives and design features.”

ISBN 978-1-74249-217-9; Cat. no. AGE 67; 16pp

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Dementia Across Australia: 2011-2050 – Deloitte Access Economics for Alzheimer’s Australia – 9 September 2011

Posted on October 17, 2011. Filed under: Aged Care / Geriatrics | Tags: , |

Dementia Across Australia: 2011-2050 – Deloitte Access Economics for Alzheimer’s Australia – 9 September 2011

“Deloitte Access Economics was commissioned by Alzheimer’s Australia to provide updated dementia prevalence estimates and projections for Australia.  Specifically, this report estimates the number of people with dementia in Australia in 2011, and predicts the number of people who will be living with dementia in Australia in the future, from 2012 until 2050.”

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The £20 Billion Question – an inquiry into improving lives through cost effective dementia services from the All-Party Parliamentary Group on Dementia – July 2011

Posted on August 8, 2011. Filed under: Aged Care / Geriatrics | Tags: |

The £20 Billion Question – an inquiry into improving lives through cost effective dementia services from the All-Party Parliamentary Group on Dementia – July 2011

“The terms of reference of the inquiry

In December 2010 the APPG on Dementia announced that it would undertake an inquiry into how to make the best use of the resources currently spent on dementia while at the same time improving outcomes for people with dementia and carers.

A key stimulus for this inquiry was the current difficult financial climate for public services, and also the existing evidence to show that although dementia costs the UK £20 billion a year, much of this money is spent inefficiently on poor-quality care.

The APPG was interested to find current examples of good practice in dementia care, which are both value for money and consistently deliver good outcomes for people. It also wanted to bring these together in a report as a useful tool that providers and commissioners of dementia care can draw on.

The inquiry requested evidence from a variety of stakeholder groups, including people with dementia, carers, health and social care professionals, care home and home care providers, academics, regulators and trade bodies.

These people were asked what they saw as the barriers to achieving quality and cost-efficient dementia care across the UK, and what opportunities there are to develop knowledge-sharing and best practice in this area.”  … continues on the site

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The £20 billion question – An inquiry into improving lives through cost effective dementia services – All-Party Parliamentary Group on Dementia [UK] – July 2011

Posted on July 14, 2011. Filed under: Aged Care / Geriatrics | Tags: |

The £20 billion question – An inquiry into improving lives through cost effective dementia services – All-Party Parliamentary Group on Dementia [UK] – July 2011
full text

“Key findings of the inquiry

The number of people living with dementia in the UK is set to increase from 750,000 in 2010 to over a million by 2025. The financial cost of dementia in the UK is estimated to be £20 billion a year, and is estimated to grow to over £27 billion by 2018.

The inquiry concluded that given the high costs of dementia and the human cost of failing to provide good quality care, service commissioners and planners must treat dementia as a priority area for improving cost-effectiveness. Cost effective dementia services could play a key role in supporting health and social care services deliver savings required of them by the government.

The inquiry highlighted the need to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions. It also calls on the health and social care syst

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Common core principles for supporting people with dementia: a guide to training the social care and health workforce – Skills for Health – 9 June 2011

Posted on June 30, 2011. Filed under: Aged Care / Geriatrics, Educ for Hlth Professions, Workforce | Tags: , |

Common core principles for supporting people with dementia: a guide to training the social care and health workforce – Skills for Health – 9 June 2011

“The ‘Common core principles for supporting people with dementia’ have been produced jointly by Skills for Care and Skills for Health. They can be used to support workforce development for any member of staff, in any health or social care setting, working with people at any stage of dementia. They can also be used to inform the content of curricula and training courses.”

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Optimising treatment and care for people for people with behavioural and psychological symptoms of dementia – UK – 10 June 2011

Posted on June 30, 2011. Filed under: Aged Care / Geriatrics | Tags: |

Optimising treatment and care for people for people with behavioural and psychological symptoms of dementia – UK – 10 June 2011

Pages: 27

“This best practice guide has been designed to support health and social care professionals to determine the best treatment and care for people experiencing behavioural and psychological symptoms of dementia (BPSD).”

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The Ministerial Group on Dementia Research – headline report – UK – 28 June 2011

Posted on June 30, 2011. Filed under: Aged Care / Geriatrics, Research | Tags: |

The Ministerial Group on Dementia Research – headline report – UK – 28 June 2011

“The Ministerial Advisory Group on Dementia Research, chaired by Paul Burstow, M.P., Minister of State for Care Services, has been working over the last 18 months on proposals to increase the volume, quality and impact of dementia research.

The Advisory Group has now completed its work and produced its final Headline Report, with a detailed ‘Route map for dementia research’. The Map provides a comprehensive set of agreed actions, with clear timelines. Progress against these actions will be assessed at a final meeting of the Advisory Group in 12 months time.”

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Understanding out of hospital dementia care report 2011 – Healthcare at Home – 19 May 2011

Posted on May 23, 2011. Filed under: Aged Care / Geriatrics | Tags: |

Understanding out of hospital dementia care report 2011 – Healthcare at Home – 19 May 2011

Media release

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The European Dementia Research Agenda – International Longevity Centre – UK – 24 February 2011

Posted on March 4, 2011. Filed under: Aged Care / Geriatrics | Tags: |

The European Dementia Research Agenda – International Longevity Centre – UK – 24 February 2011

“A report launched today reveals that the dementia research agenda in most EU countries remains critically under-funded and under-valued.

The report, ‘The European Dementia Research Agenda’ finds there is widespread disparity in the diagnosis, treatment and care of people with dementia across Europe.

The lead author of the report, Sally-Marie Bamford, ILC-UK Senior Researcher, argues that research needs to be afforded a greater role in tackling Alzheimer’s disease and other dementias. The report suggests investment in clinical research and translational research will reap its own rewards and holds the key to improved prevention, diagnosis and treatment.”

…continues on the site

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Support. Stay. Save. Care and support of people with dementia in their own homes – Alzheimer’s Society – January 2011

Posted on January 28, 2011. Filed under: Aged Care / Geriatrics | Tags: , |

Support. Stay. Save. Care and support of people with dementia in their own homes – Alzheimer’s Society – January 2011

“There are 750,000 people with dementia living in the UK and two thirds of people with dementia live in the community. Alzheimer’s Society’s Support. Stay. Save. report reveals many people with dementia and carers receive insufficient support and care at home. Part of the Society’s ongoing putting care right campaign, Support. Stay. Save presents findings from over 2,400 people with dementia, carers and home care workers.

What are the headline findings of the report?

Support. Stay. Save found that people with dementia and carers greatly value living in their own home and being able to play a part in the community and want services to enable them to meet these aspirations. However, many are not receiving sufficient support and care for this to be a reality.

Half of those who responded to Alzheimer’s Society survey said that people with dementia and their carers living at home do not receive adequate support to meet their needs. This lack of support not only leads to admission to hospital and early entry into care homes, but also risks leaving hundreds of thousands of unpaid carers at risk of stress, depression and other serious illnesses.

Separate analysis on Support. Stay. Save suggests that as many as 50,000 people currently living with dementia in the UK may end up going into care homes early because of insufficient support in the community. For each month these people can be supported at home, rather than in care, the state will save £70 million in care home bills.”  … continues

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Living well with dementia: a National Dementia Strategy – good practice compendium – UK Department of Health – 13 January 2011

Posted on January 18, 2011. Filed under: Aged Care / Geriatrics | Tags: |

Living well with dementia: a National Dementia Strategy – good practice compendium – UK Department of Health – 13 January 2011

“This good practice compendium has been brought together from across the regions to support local delivery of the national dementia strategy and improve outcomes for people with dementia and their carers. It is an enabler for local change, as described in the Department of Health’s revised outcomes focused implementation plan.”

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National audit of dementia care in general hospitals – Royal College of Psychiatrists interim report – December 2010

Posted on January 18, 2011. Filed under: Aged Care / Geriatrics | Tags: , |

National audit of dementia care in general hospitals – Royal College of Psychiatrists interim report – December 2010

“The National Audit of Dementia is working with hospitals providing general acute inpatient services to measure criteria relating to care delivery which are known to impact on people with dementia admitted to hospital.

Criteria include policies and governance in the hospital that recognise and support the needs of people with dementia, elements of comprehensive assessment, involvement of carers, discharge planning, and identified changes to support needs during admission. 99% of acute trusts in England and Wales have one or more sites registered for the audit.”

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Improving the Quality of Care for Dementia – RAND Corporation – May 2010

Posted on May 19, 2010. Filed under: Aged Care / Geriatrics, Mental Health Psychi Psychol | Tags: , |

Improving the Quality of Care for Dementia – RAND Corporation – May 2010  
By: David Reuben, Carol P. Roth, Janet C. Frank, Susan H. Hirsch, Diane Katz, Heather McCreath, Jon Younger, Marta Murawski, Elizabeth Edgerly, Joanne Maher, Katie Maslow, Neil S. Wenger

Results of a pilot program in RAND Health’s Assessing Care of Vulnerable Elders-2 project indicate that quality indicators for dementia care are improved when primary care practices are coupled with links to local Alzheimer’s Association chapters.

Pages: 2
Document Number: RB-9530

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Diagnosing Dementia – [UK] Parliamentary Office of Science and Technology – Postnote #349 January 2010

Posted on February 5, 2010. Filed under: Aged Care / Geriatrics, Diagnostics | Tags: |

Parliamentary Office of Science and Technology – Postnote #349 January 2010 – Diagnosing Dementia

“Dementia currently affects 700,000 people in the UK, yet only 1 in 3 cases receives a formal diagnosis from a doctor.1 Dementia costs the UK economy £17bn a year and is one of the main causes of disability in later life. A key aim of the Department of Health’s 2009 National Dementia Strategy is early diagnosis. This is intended to improve quality of life through increased support, prevention of harm and reduction in care home admissions. This briefing outlines current diagnostic practices, research into newer tools and service provision proposals that aim to increase early diagnosis.”

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Living well with dementia: a National Dementia Strategy implementation plan – UK – 22 July 2009

Posted on July 22, 2009. Filed under: Aged Care / Geriatrics | Tags: , |

Living well with dementia: a National Dementia Strategy implementation plan

Document type:      Guidance
Author:  UK   Department of Health
Published date:      22 July 2009
Pages:      35

“The National Dementia Strategy Implementation Plan describes the implementation task, arrangements for national and regional support, and the programmes that have been put in place to support delivery of Living well with dementia: a National Dementia Strategy.  This refreshed plan replaces the one that was issued alongside the Strategy on 3 February 2009.”

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