Patient Consent for Electronic Health Information Exchange – Office of the National Coordinator for Health Information Technology

Posted on September 19, 2013. Filed under: Health Informatics, Medical Records, Patient Participation | Tags: , , |

Patient Consent for Electronic Health Information Exchange – Office of the National Coordinator for Health Information Technology

“Electronic health information exchange (eHIE) — the way that health care providers share and access health information using their computers — is changing rapidly. One way some providers share and access information is through a third-party organization called a health information exchange organization (HIE).

HIEs help route information among various participating providers. In some HIEs, a provider can send out an electronic broadcast query that asks all provider participants whether they have information on a specific patient.

As eHIE increases, patient trust in HIEs must be ensured and patients may more often be asked to make a “consent decision.” This consent decision concerns the sharing and accessing of the patient’s health information through an HIE for treatment, payment, and health care operations purposes. When patients are asked to make consent decisions, we encourage providers, HIEs, and other health IT implementers to help patients make the consent decision meaningful.

Implementers can enable meaningful consent by ensuring they consider the key parts displayed in the image to the right.”

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Good practice in research and consent in research – General Medical Council Supplementary Guidance – April 2010

Posted on May 19, 2010. Filed under: Research | Tags: |

Good practice in research and consent in research – General Medical Council Supplementary Guidance – April 2010

“The supplementary guidance Good practice in research and Consent to research set out the good practice principles that doctors are expected to understand and follow if they are involved in research. They provide more detailed guidance on how the principles in Good Medical Practice and in Consent: patients and doctors making decisions together apply in the context of research.

This document brings together all of the GMC’s advice to doctors involved in research. This includes the full text of Good practice in research and Consent to research and extracts from:

Confidentiality on research and other secondary uses of data; and 0-18 years: guidance for all doctors on involving children
or young people in research. You can view an online version of the research guidance documents

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HHS advisory panel considers patient consent framework – US – 23 April 2010

Posted on April 28, 2010. Filed under: Health Informatics, Medical Records | Tags: |

HHS advisory panel considers patient consent framework   By Alice Lipowicz Apr 23, 2010  Extract copied from Federal Computer Week

“An advisory group to the Health and Human Services Department today began considering a draft Basic Patient Privacy Consent technical framework that describes how health organizations should incorporate patients’ consents and consent policies into their enterprises.

The Health IT Policy Committee’s privacy and security workgroup gave its members a draft patient consent framework. The draft was created with input from Integrating the Health Enterprise, an organization that promotes the coordinated use of technical standards.

The patient consents are needed for collecting and sharing patient health care data in electronic health record (EHR) systems to improve quality of care and public health. In many cases, data is de-identified to avoid identifying the patient. HHS currently is distributing $17 billion in incentives under the economic stimulus law to doctors and hospitals that adopt the electronic systems.”

…continue on Federal Computer Week site

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Consumer consent options for electronic health information exchange: policy considerations and analysis [white paper] – US Department of Health & Human Services – 23 March 2010

Posted on March 25, 2010. Filed under: Health Informatics, Patient Participation | Tags: |

Consumer consent options for electronic health information exchange: policy considerations and analysis [white paper] – US Department of Health & Human Services – 23 March 2010

“Executive summary

The issue of whether, to what extent, and how individuals should have the ability to exercise control over their health information represents one of the foremost policy challenges related to the electronic exchange of health information. The current landscape of possible consent models is varied, and the factors involved in choosing among them are complex. States and other entities engaged in facilitating the exchange of electronic health information are struggling with a host of challenges, chief among them the establishment of policies and procedures for patient participation in their exchange efforts. While some have adopted policies enabling patients to exercise individual choice, others have prioritized the needs and concerns of other key stakeholders, such as providers and payers. The purpose of this paper is to discuss in detail the issues, nuanced considerations, and possible tradeoffs associated with the various consent options to help facilitate informed decision making.”

…continues

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