Palliative Care

Dying well – Grattan Institute – 28 September 2014

Posted on October 2, 2014. Filed under: Palliative Care | Tags: |

Dying well – Grattan Institute – 28 September 2014

by Hal Swerissen and Stephen Duckett

“Seventy per cent of Australians want to die at home yet only 14 per cent do so. Despite their wishes, about half of people die in hospital and a third in residential care. Dying in Australia is more institutionalised than in most countries. Medical and community attitudes plus a lack of funds for formal, home-based care mean that Australians die at home at half the rate that people do in New Zealand, the United States, Ireland and France.

More than at any time in history, most people die when they are old, and are more likely than past generations to know when in the near future they are going to die. That gives us a great opportunity to help people plan to die well. Policy and attitudinal change could enable more people to die comfortably at home and in home-like environments, surrounded by family, friends and effective services.

Dying Well finds that because most people do not speak up about the way they would like to die, they often experience a disconnected, confusing and distressing array of services, interventions and relationships with health professionals.

The report recommends more public discussion, including an education campaign, about the limits of health care as death approaches and the need to focus on end-of-life care.”

… continues on the site

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One Chance to Get it Right: Improving people’s experience of care in the last few days and hours of life – June 2014

Posted on June 27, 2014. Filed under: Palliative Care | Tags: |

Liverpool Care Pathway review: response to recommendations – Department of Health [England] – 26 June 2014

One Chance to Get it Right: Improving people’s experience of care in the last few days and hours of life – June 2014

Leadership Alliance for the Care of Dying People

Review of Liverpool Care Pathway for dying patients – 15 July 2013

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Federal pain research database launched – National Institutes of Health – 27 May 2014

Posted on May 30, 2014. Filed under: Anaesthesiology, Palliative Care | Tags: |

Federal pain research database launched – National Institutes of Health – 27 May 2014

The Interagency Pain Research Portfolio (IPRP), a database that provides information about pain research and training activities supported by the federal government, has been launched by six federal agencies.

Pain is a symptom of many disorders; chronic pain can present as a disease in of itself. The economic cost of pain is estimated to be hundreds of billions of dollars annually in lost wages and productivity.

“This database will provide the public and the research community with an important tool to learn more about the breadth and details of pain research supported across the federal government. They can search for individual research projects or sets of projects grouped by themes uniquely relevant to pain,” said Linda Porter, Ph.D., Policy Advisor for Pain at the National Institute of Neurological Disorders and Stroke (NINDS), part of the National Institutes of Health (NIH). “It also can be helpful in identifying potential collaborators by searching for topic areas of interest or for investigators.”

Users of the database easily can search over 1,200 research projects in a multi-tiered system. In Tier 1, grants are organized as basic, translational (research that can be applied to diseases), or clinical research projects. In Tier 2, grants are sorted among 29 scientific topic areas related to pain, such as biobehavioral and psychosocial mechanisms, chronic overlapping conditions, and neurobiological mechanisms.

The Tier 2 categories are also organized into nine research themes: pain mechanisms, basic to clinical, disparities, training and education, tools and instruments, risk factors and causes, surveillance and human trials, overlapping conditions, and use of services, treatments, and interventions.”

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National care of the dying audit for hospitals, England – Royal College of Physicians – May 2014

Posted on May 16, 2014. Filed under: Palliative Care | Tags: |

National care of the dying audit for hospitals, England – Royal College of Physicians – May 2014

“The National Care of the Dying Audit for Hospitals, England, has found significant variations in care across hospitals in England. The audit shows that major improvements need to be made to ensure better care for dying people, and better support for their families, carers, friends and those important to them.”

Report: National care of the dying audit for hospitals, England – Royal College of Physicians – May 2014

Executive summary: National care of the dying audit for hospitals, England – Royal College of Physicians – May 2014

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Difficult conversations with dying people and their families – Marie Curie Cancer Care – March 2014

Posted on March 13, 2014. Filed under: Palliative Care |

Difficult conversations with dying people and their families – Marie Curie Cancer Care – March 2014

Press release: Marie Curie calls for ‘around the clock’ care for terminally ill in England – 9 March 2014

“Less than half of GPs believe the majority of their patients’ pain is relieved all the time

Terminally ill people are not getting access to the right care when they need it, according to a new survey commissioned by Marie Curie with Doctors.net.uk. The survey, which reflects the views of 1,000 GPs across the UK, also reveals family doctors’ concerns about supporting patients being cared for at home.”

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Care for people in the last days and hours of life – the Leadership Alliance for the Care of Dying People – 14 January 2014

Posted on January 20, 2014. Filed under: Palliative Care | Tags: |

Care for people in the last days and hours of life – the Leadership Alliance for the Care of Dying People – 14 January 2014

“The Leadership Alliance for the Care of Dying People (LACDP) has published an interim statement, which gives an update on its work to date following the publication of the independent report, More Care, Less Pathway, on the Liverpool Care Pathway (LCP).

The independent review concluded that many of the issues around the LCP were that it had come to be regarded and used as a generic protocol or a tick box exercise. Therefore, the Alliance will not produce a replacement for the LCP. Instead, the Alliance aspires to a shared vision for care focused on a set of agreed outcomes and guiding principles to support individualised care for dying people. This will help to ensure that the way in which a dying person is cared for, including the goals and other key aspects of their care, will be focused around the individual, in line with their needs and preferences; and developed and delivered in consultation with them, wherever possible and/or their family.”

… continues on the site

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Public Health England and NHS Improving Quality announce changes to the End of Life Care Co-ordination Information Standard – 10 January 2014

Posted on January 14, 2014. Filed under: Health Informatics, Palliative Care | Tags: , , |

Public Health England and NHS Improving Quality announce changes to the End of Life Care Co-ordination Information Standard – 10 January 2014

“The standard specifies the core content to be held in Electronic Palliative Care Co-ordination Systems (EPaCCS), or paper-based care co-ordination systems. Evidence is emerging that the standard improves care co-ordination, supporting more people to die in their place of choice (What we know now 2013, PHE National End of Life Care Intelligence Network).

Some changes have been made to the standard following feedback from implementers and key stakeholders and these have recently been published by the Information Standards Board for Health and Social Care. They include:

new data item to record consent status
data item to record actual place of death moved to core data set
data item to record date of death
subset of codes now specified for the disability data item
additional codes for the data item on informal carer, prescription of palliative care medication and formal carers involved in care
data item for main informal carer to be mandatory for completion
removal of non-specific codes for primary end of life care diagnosis
removal of Liverpool Care Pathway (LCP) from the data item that records ‘End of Life Care Tools in Use’ ”

… continues on the site

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Life after death: six steps to improve support in bereavement – [UK] National Council for Palliative Care / National Bereavement Alliance – 9 January 2014

Posted on January 10, 2014. Filed under: Palliative Care, Workforce |

Life after death: six steps to improve support in bereavement – [UK] National Council for Palliative Care / National Bereavement Alliance – 9 January 2014

“Bereaved people in Britain are being failed by a lack of support in the workplace, according to a new report by Dying Matters together with our lead charity, the National Council for Palliative Care, and the National Bereavement Alliance

The report, ‘Life after death: six steps to improve support in bereavement’, reveals that a third of people who were bereaved in the last five years while in a job do not feel their employers treated them with compassion.

Despite an uncertain jobs market, the ComRes research also found that more than half of the 4,000 people polled would consider leaving their job if their employer did not provide proper support if someone close to them died.

The research found considerable public backing for bereavement support in the workplace, with more than four in five people agreeing that all employers should have a compassionate employment policy, including paid bereavement leave, flexible working and a range of other support.”

… continues on the site

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Review of Liverpool Care Pathway for dying patients – Department of Health [England] – 15 July 2013

Posted on July 25, 2013. Filed under: Palliative Care | Tags: |

Review of Liverpool Care Pathway for dying patients – Department of Health [England] – 15 July 2013

“This report sets out recommendations regarding the Liverpool Care Pathway and end of life care following an independent review of the LCP chaired by Baroness Julia Neuberger.

The recommendations include:

•phasing out the LCP and and replacing it with an individual end of life care plan
•a general principle that a patient should only be placed on the LCP or a similar approach by a senior responsible clinician in consultation with the healthcare team
•unless there is a very good reason, a decision to withdraw or not to start a life-prolonging treatment should not be taken during any ‘out of hours’ period
•an urgent call for the Nursing and Midwifery Council to issue guidance on end of life care
•an end to incentive payments for use of the LCP and similar approaches
•a new system-wide approach to improving the quality of care for the dying”

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Future needs and preferences for hospice care: challenges and opportunities for hospices – May 2013

Posted on May 16, 2013. Filed under: Palliative Care |

Future needs and preferences for hospice care: challenges and opportunities for hospices – May 2013

“This working paper was written in response to the evidence based report from Cicely Saunders Institute in order to help hospices understand and prepare for the markedly different future by providing some priorities for hospices to focus on.”

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Palliative and end of life care indicators – Healthcare Improvement Scotland – 28 March 2013

Posted on April 12, 2013. Filed under: Palliative Care | Tags: |

Palliative and end of life care indicators – Healthcare Improvement Scotland – 28 March 2013

“For all palliative and end of life care services in Scotland, these indicators specify a minimum set of measures that demonstrate person-centred, safe and effective care is being delivered.

Patients, carers, third sector and healthcare professionals helped to develop the indicators for palliative and end of life care.”

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The provincial end-of-life care action plan for British Columbia – March 2013

Posted on April 3, 2013. Filed under: Palliative Care | Tags: |

The provincial end-of-life care action plan for British Columbia – March 2013

Extract from the executive summary:

“This action plan is intended to guide health authorities, physicians, health care providers, and community organizations in planning integrated primary and community care services. It supports quality hospice, palliative and end-of-life care services across British Columbia with a focus on supporting individuals with life-limiting conditions to remain at home in their community, reducing the need for hospital or emergency department visits, and improving coordination of care across all settings.

Based on leading practices for managing chronic and life-limiting conditions, the action plan incorporates a population needs-based approach to palliative care, which recognizes that the health care needs of individuals vary over the course of a life-limiting illness. With this in mind, end-of-life care is most effective in meeting the needs of a patient with complex needs through an integrated team approach that includes the patient, patient’s family, family physician, specialists, nurse practitioners, community health teams and others.”

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Guidance relating to assisting suicide – General Medical Council [UK] – 31 January 2013

Posted on February 5, 2013. Filed under: Palliative Care | Tags: , |

Guidance relating to assisting suicide – General Medical Council [UK] – 31 January 2013

“The General Medical Council has published new guidance for:

  • the Investigation Committee and case examiners (decision-makers) to use when they are considering allegations about a doctor’s fitness to practise that relate to encouraging or assisting suicide
  • doctors to use when a patient seeks advice about ending their lives

Both pieces of guidance come into effect today.”

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Resource and Capability Framework for Integrated Adult Palliative Care Services in New Zealand – Ministry of Health – 22 January 2013

Posted on February 5, 2013. Filed under: Palliative Care |

Resource and Capability Framework for Integrated Adult Palliative Care Services in New Zealand – Ministry of Health – 22 January 2013

“The Framework is a resource for district health boards, designed to provide guidance to funders and policy makers, informs strategic planning and purchasing of accessible and equitable palliative care services for New Zealanders

The Framework was commissioned by the Ministry in May 2011 following advice there is a lack of common understanding about what constitutes specialist or primary palliative care. The Framework describes the levels of palliative care required in New Zealand including the resources and capabilities needed to support service delivery.”

 

 

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Transforming end of life care in acute hospitals – NHS National End of Life Care Programme – 13 December 2012

Posted on January 4, 2013. Filed under: Palliative Care |

Transforming end of life care in acute hospitals – NHS National End of Life Care Programme – 13 December 2012

“Feedback from a focus group of pilot site representatives looking at factors that have influenced progress during the first phase.”

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The Disconnect Between the Advance Care Planning Needs of the Healthcare System and the Needs of Patients – GeriPal – 11 December 2012

Posted on January 2, 2013. Filed under: Aged Care / Geriatrics, Palliative Care, Patient Participation |

The Disconnect Between the Advance Care Planning Needs of the Healthcare System and the Needs of Patients – GeriPal – 11 December 2012

Extract:

“In the spirit of patient empowerment, we have created a website called PREPARE that may address some gaps that currently available advance care planning materials do not fill. For instance, PREPARE is designed to empower people, through video demonstration, HOW to identify their values, how to communicate their values, how to asks physicians questions, and how to make informed medical decisions that are aligned with their values and beliefs. PREPARE is designed to be completed outside of the medical environment, is written at a 5th-grade reading level, includes videos that model behavior, helps people engage in a step-by-step process of advance care planning, and will be made available for free.

PREPARE will launch January 4th, 2013.”

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Palliative care services in Australia – AIHW – 19 October 2012

Posted on October 25, 2012. Filed under: Palliative Care | Tags: |

Palliative care services in Australia – AIHW – 19 October 2012

“Palliative care services in Australia is the first in a planned series of annual reports providing a detailed picture of the national response to the palliative care needs of Australians. Details from a range of data sources for 2009-10, and where available 2010-11, are presented, as are changes over time. There were almost 56,000 palliative care separations reported in public and private hospitals in 2009-10. Almost $3 million in Medicare Benefits Schedule payments was paid for palliative medicine specialist services in 2010-11.”

ISBN 978-1-74249-360-2; Cat. no. HWI 120; 146pp

Media release

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Understanding patterns of health and social care at the end of life – Nuffield Trust – 16 October 2012

Posted on October 17, 2012. Filed under: Palliative Care, Social Work | Tags: |

Understanding patterns of health and social care at the end of life – Nuffield Trust – 16 October 2012

“This report details the key findings from a study of over 73,000 people in England during the last 12 months of their lives. It suggests that social care may help prevent hospital admission.”

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Tried and tested End of Life Care Modelling Tools launched today – NHS National End of Life Care Programme – 22 May 2012

Posted on May 28, 2012. Filed under: Health Mgmt Policy Planning, Palliative Care, Workforce | Tags: , |

Tried and tested End of Life Care Modelling Tools launched today – NHS National End of Life Care Programme – 22 May 2012

“Eight early adopter sites across England have worked with the National End of Life Care Programme to trial a set of modelling tools to support end of life care commissioners and planners.

The updated tools are now freely available on the National End of Life Care Intelligence Network website together with a range of supporting materials, including workbooks and case studies from the early adopters.

There are three modelling tools:

The Cohort Model that identifies the end of life care needs of their population over a 10-year period
The Skills for Health Functional Analysis tool, which assesses workforce skills required to ensure quality end of life care provision
The Yorkshire & the Humber Co-Design Model, which assesses how many people dying in hospital could reasonably end life in an alternative care setting and provides costings for Alternative Care Pathways.

Together these tools:

provide analytical support to organisations aiming to achieve the vision of the National End of Life Care Strategy and the NHS QIPP agenda
provide commissioners and planners with a better understanding of local need for end of life care services and the competences required in the workforce and
model the expected impact of service redesign.

To view the tools, go to End of Life Care Models.”

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What do we know now that we didn’t know a year ago? New intelligence on end of life care in England – May 2012

Posted on May 9, 2012. Filed under: Palliative Care | Tags: |

What do we know now that we didn’t know a year ago? New intelligence on end of life care in England – May 2012

This report highlights areas where improvements have been made as well as where further action is needed to improve care for people who are dying. The publication is divided into 16 categories ranging from place of care and death to latest trends in different settings, different disease types, costs, quality of care, workforce and public attitudes.

Press release

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End of Life Care [research methodology] – School for Social Care Research – April 2012

Posted on April 26, 2012. Filed under: Palliative Care, Research |

End of Life Care [research methodology] – School for Social Care Research – April 2012

by Claire Goodman, Katherine Froggatt, Elspeth Mathie

“Abstract

This review provides an overview of the range of research methods that have been commonly used in end of life care research and their relevance for social care. It provides a policy and service context for understanding end of life care research in social care and, using examples from relevant research, considers the advantages and disadvantages of different research methods and tools. The particular ethical challenges and practical issues that may arise are discussed along with some strategies and sources of support to address them.”

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Understanding the cost of end of life care in different settings – Marie Curie Cancer Care – February 2012

Posted on March 28, 2012. Filed under: Health Economics, Palliative Care | Tags: |

Understanding the cost of end of life care in different settings – Marie Curie Cancer Care – February 2012

“Key points
• Around 53 per cent of deaths in England take place in hospital despite the fact that this is the location least preferred by patients.
• Between 92,000 and 142,500 people in England each year have an unmet need for palliative care.
• The estimated cost for a day of community care at the end of life is £145 compared with the cost of £425 for a specialist palliative in-patient bed day in hospital. Changing the setting of care for a patient at the end of life has the potential to reduce the daily cost of care by £280.
• Between 355,000 and 457,000 patients need palliative care every year. If additional community services were developed to enable even 30,000 patients to reduce their hospital stay by just four days, there would be a potential saving of £34 million.”

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End of Life Care Co-ordination: core content – NHS National End of Life Care Programme – 20 March 2012

Posted on March 22, 2012. Filed under: Palliative Care | Tags: |

End of Life Care Co-ordination: core content – NHS National End of Life Care Programme – 20 March 2012

“National information standard (ISB 1580)

This national information standard, which specifies the core record content to support the provision of high-quality co-ordinated care at the end of life, was published 20th March 2012.

The standard facilitates consistent recording of information by health and social care agencies and, with the consent of the individual, supports safe and effective management and sharing of information.

The standard was developed by the National End of Life Care Programme and the Department of Health and approved by the Information Standards Board for Health and Social Care. Implementation of the standard will primarily be through Electronic Palliative Care Co-ordination Systems (EPaCCS), and it will ensure the correct and effective use of data in these systems. However, it will also be useful for paper-based co-ordination systems.

Implementation guidance and professional record keeping guidance have been developed to support implementation of the information standard.”

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Getting it right: End of life care in advanced kidney disease – NHS Kidney Care – March 2012

Posted on March 16, 2012. Filed under: Nephrology, Palliative Care | Tags: |

Getting it right: End of life care in advanced kidney disease – NHS Kidney Care – March 2012

“This document brings together the experiences and learning from three project groups that have been working over the last two years to implement the framework for end of life care in advanced kidney disease. It also addresses the data items that are associated with managing end of life care.”

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Critical success factors that enable individuals to die in their preferred place of death – NHS National End of Life Care Programme – 23 February 2012

Posted on February 29, 2012. Filed under: Palliative Care | Tags: |

Critical success factors that enable individuals to die in their preferred place of death – NHS National End of Life Care Programme – 23 February 2012

“Highlighting good practice from seven Primary Care Trusts across the country, this report identifies the critical success factors associated with improving end of life care and enabling a person to die in the place of their choice.

The report is intended as a starting point to help those commissioning and planning services to see what has worked well in other areas, however it does not suggest that one size fits all.

The factors that are considered critical are (not ranked):

Strong commissioning and clinical leadership
Use of nationally recognised drivers that attract payment – LES and CQUINs
Flexible budgets and care packages
Use of nationally recognised tools or their local equivalent – ACP, GSF, LCP, PPC, ADAs and CHC Fast Track Pathway
Shared electronic information systems
Clearly defined access to 24 hour cover
Development of care homes
Use of facilitator roles and co-ordination of care across boundaries
Training to support staff delivering end of life care.”

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Commission on Assisted Dying – Demos – 5 January 2012

Posted on January 9, 2012. Filed under: Palliative Care | Tags: , , |

Commission on Assisted Dying – Demos – 5 January 2012

“The current legal status of assisted dying is inadequate and incoherent…”

ISBN   978-1-906693-92-3

“The Commission on Assisted Dying, launched in November 2010, was set up to consider whether the current legal and policy approach to assisted dying in England and Wales is fit for purpose. In addition to evaluating the strengths and weaknesses of the legal status quo, the Commission also set out to explore the question of what a framework for assisted dying might look like, if such a system were to be implemented in the UK, and what approach might be most acceptable to health and social care professionals and to the general public.

The Commission, chaired by Lord Falconer, includes members with expertise in law, medicine, social care, mental health, palliative care, theology, disability and policing. The Commission engaged in a wide-ranging inquiry into the subject, including a public call for evidence which received over 1,200 responses, public evidence hearings, international research visits, and original and commissioned research on the issues surrounding assisted dying.

In this report, the Commission concludes that the current legal status of assisted suicide is inadequate and incoherent. While the current legal regime can be distressing for the people affected and their families, it is also unclear for health and social care staff, and lays a deeply challenging burden on police and prosecutors, which could be eased by a new statutory framework. A proposed legal framework for assisted dying is laid out in detail in the report, including strict criteria to define who might be eligible to receive assistance and robust safeguards to prevent abuse of any new law.

Based on the evidence received, the Commission considers that substantial improvements to health and social care services would be needed in parallel with changes to the law to permit assisted dying. It proposes that the role of any future assisted dying legislation must be to provide all people with access to high quality end of life care and protect potentially vulnerable people from any form of social pressure to end their lives, at the same time as providing people with greater choice and control regarding how and when they die.”

… continues on the site

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NICE publishes new end of life care quality standard – 30 November 2011

Posted on December 9, 2011. Filed under: Palliative Care | Tags: , |

NICE publishes new end of life care quality standard – 30 November 2011

“Around half a million people die each year in England and the issues considered to be important at this time can differ enormously from one person to another. Preparation for death, communication with carers and physicians that is sensitive and responsive, and being treated with dignity and respect are often deemed significant.

This new quality standard includes 16 statements for the care of adults (18 years and older) with advanced, progressive, or incurable conditions who are approaching the end of their life and are expected to die within the next 12 months. The end of life definition also includes adults with existing conditions who are at risk of dying from a sudden, acute crisis in their condition, or those with life-threatening acute conditions caused by sudden catastrophic events. The standard also covers support for the families and carers of such people.

The quality standard statements include:”

… continues on the site

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When someone asks for your assistance to die: RCN guidance on responding to a request to hasten death – Royal College of Nursing – 19 October 2011

Posted on October 24, 2011. Filed under: Palliative Care | Tags: , |

When someone asks for your assistance to die: RCN guidance on responding to a request to hasten death – Royal College of Nursing – 19 October 2011
ISBN: 978-1-906633-86-8

“Abstract
Assisted suicide generates debate on a variety of levels – ethical, moral, religious, spiritual, political, cultural, psychological, professional and legal. It is an issue that affects the nursing workforce, both as individuals and as health professionals. Most people who are approaching the end of their lives in the UK do not ask a health professional to hasten their death, but a minority of individuals do express a readiness or desire to die. Nurses and health care assistants (HCAs) are often the members of staff that patients, and their families and carers, feel comfortable enough to approach and express a desire to actively hasten death. However, such requests can provoke concern for nurses and HCAs as they determine how best to respond professionally and compassionately and continue to support patients in their ongoing care. This guidance has been developed to support nurses, HCAs, and other health professionals in adult practice who may be asked by patients, or their families or carers, to become involved in assisting suicide. It covers the law on assisted suicide in the UK, as well as the law on advance decisions. The publication includes information on when and why people express a wish to die and guidance on professional accountability and end of life care, with frequently asked questions to help health professionals respond in such circumstances. It also includes details of further resources available to improve end of life care practice.”

Press release

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Trends in palliative care in Australian hospitals – AIHW – 19 October 2011

Posted on October 20, 2011. Filed under: Palliative Care | Tags: |

Trends in palliative care in Australian hospitals – AIHW – 19 October 2011

“Trends in palliative care in Australian hospitals provides an overview of the nature and extent of palliative care separations in public and private hospitals across Australia for the 10-year period from 1999-00 to 2008-09. These separations may have occurred in a dedicated palliative care ward, a hospice or in other admitted patient beds in a hospital. The report indicates that there has been a substantial increase in the number of palliative care separations in admitted patient settings over time.”

ISBN 978-1-74249-210-0; Cat. no. HWI 112; 100pp

Identifying palliative care separations in admitted patient data

Media release

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Training Needs Analysis questionnaires [from the NHS National End of Life Care Programme]

Posted on October 18, 2011. Filed under: Educ for Hlth Professions, Palliative Care | Tags: |

Training Needs Analysis questionnaires [from the NHS National End of Life Care Programme]

“A Training Needs Analysis (TNA) provides a means to a needs-based approach for training and education. The TNA identifies the competences that staff require for their role, any gaps in the existing workforce skills, knowledge and attitudes and the range of training and education currently available.

To do this, analysis of this information is matched against the organisation’s demands for these skills now and in the future. This enables an education and training plan to be developed that will ensure existing and new workers are provided with opportunities to attain the skills and knowledge required.

An end of life care TNA can be used to survey all workers in health and social care – regardless of discipline, grade, role, responsibility or setting – whose work includes care and support for people approaching and at the end of their lives.

The TNA tools consist of guidance on carrying out a TNA together with three questionnaires which address key end of life care competence areas.”

… continues

Guidance for using the End of Life Care (EoLC) Training Needs Analysis (TNA) Tools 

Self Assessment Questionnaire

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Quick guide to identifying patients for supportive and palliative care – Macmillan Cancer Support, NHS Camden & NHS Islington – 10 October 2011

Posted on October 18, 2011. Filed under: Palliative Care |

Quick guide to identifying patients for supportive and palliative care – Macmillan Cancer Support, NHS Camden & NHS Islington – 10 October 2011

“Following requests from GPs, a quick guide to identifying patients for supportive and palliative care has been developed by Macmillan Cancer Support, NHS Camden and NHS Islington.”

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When a Person Dies: Guidance for Professionals on Developing Bereavement Services – 13 October 2011

Posted on October 18, 2011. Filed under: Palliative Care | Tags: , |

When a Person Dies: Guidance for Professionals on Developing Bereavement Services – 13 October 2011

“The National End of Life Care Programme has supported the Bereavement Services Association and Primary Care Commissioning in the production of ‘When a person dies: guidance for professionals on developing bereavement services.’

The manner in which professionals and volunteers respond to those who are bereaved can have a long term impact on how they grieve, their health and their memories of the individual who has died.

The publication covers the principles of bereavement services, along with bereavement care in the days preceding death, at the time of death and in the days following death. It also includes guidance on workforce and education and the commissioning and quality outcomes of bereavement care.

NHS Trusts, community providers and commissioners will wish to consider the guidance when developing policies and services relating to bereavement.”

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Investment in Research on Survivorship and Palliative and End-of-Life Care, 2005–2008: A Special Report from the Canadian Cancer Research Alliance’s Survey of Government Voluntary Sector Investment in Cancer Research – September 2011

Posted on September 23, 2011. Filed under: Oncology, Palliative Care, Research | Tags: |

Investment in Research on Survivorship and Palliative and End-of-Life Care, 2005–2008: A Special Report from the Canadian Cancer Research Alliance’s Survey of Government Voluntary Sector Investment in Cancer Research – September 2011

Canadian Cancer Research Alliance (2011). Investment in Research on Survivorship and Palliative and End-of-Life Care, 2005–2008: A Special Report from the Canadian Cancer Research Alliance’s Survey of Government Voluntary Sector Investment in Cancer Research. Toronto: CCRA.

ISBN 978-0-9866841-4-2 (print) / ISBN 978-0-9866841-5-9 (PDF)

Extract from the introduction

“This report focuses on yet another special topic, cancer survivorship and palliative and end-of-life care. It is the first to quantify investment in these two related areas of research. The framework used to classify the research was developed specifically for this report and is detailed in the next chapter. It allows the investment to be stratified by subcategories of research and tracked over time.   …
Cancer survivorship research and palliative and end-of-life care research are relatively new and emerging fields. We hope that the findings on the relative research investment in survivorship and palliative and end-of-life care in Canada will give funders key information to help them identify critical research gaps, enabling future investments to be strategically directed.”

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Preferred Priorities for Care (PPC). Support sheet 18 – National End of Life Care Programme (NHS) 5 September 2011

Posted on September 9, 2011. Filed under: Palliative Care | Tags: , |

Preferred Priorities for Care (PPC). Support sheet 18 – National End of Life Care Programme (NHS) 5 September 2011

“This support sheet provides a description of Preferred Priorities for Care, a tool for the discussion and recording of end of life care wishes and preferences.”

 

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Environments for care at the end of lifeThe King’s Fund’s Enhancing the Healing Environment Programme 2008-2010 – The King’s Fund – 18 August 2011

Posted on August 22, 2011. Filed under: Hosp Design Planning Architecture, Palliative Care | Tags: |

Environments for care at the end of lifeThe King’s Fund’s Enhancing the Healing Environment Programme 2008-2010 – The King’s Fund – 18 August 2011
96 pages   ISBN: 978 1 85717 625 4

“Summary

There is growing awareness of the importance of the environment within health care. The King’s Fund’s Enhancing the Healing Environment (EHE) programme encourages and enables nurse-led teams to work in partnership with patients to improve the environment in which to deliver care.

This publication describes projects in 19 NHS trusts and one HM prison that took part in schemes to improve the environment of care at the end of life. It describes the broader EHE programme, which has been supported by the Department of Health in a series of publications entitled ‘Improving the patient experience’  and goes on to present case studies of the sites that took part in the programme. Each of the case studies includes photographs of the original space that was chosen for improvement and of the finished project. There are also comments from staff and from users highlighting the importance of the changes to the environment  for both the cared for and the carer. The projects show that, even in the most uninspiring environment, it is possible to create welcoming and comfortable spaces that are fit for purpose, good value for money and can improve the quality of care and the patient experience.

The text includes a  summary of the independent evaluation of the programme by the University of Nottingham and also a comprehensive project directory, offering details of the individual work carried out in each project, names of artists and others from whom work was commissioned and also project costings.”

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Act & early to avoid A & E – End of Life Care – 18 July 2011

Posted on August 10, 2011. Filed under: Palliative Care | Tags: |

Act & early to avoid A & E – End of Life Care – 18 July 2011

“The purpose of this briefing is to help you to identify the immediate priority actions to commission effective end of life care. “

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VOICES redesign and testing to inform a National End of Life Care survey – NHS – July 2011

Posted on August 10, 2011. Filed under: Palliative Care, Patient Participation | Tags: |

VOICES redesign and testing to inform a National End of Life Care survey – NHS – July 2011

“The End of Life Care Strategy made a commitment to build on the VOICES (Views of Informal Carers – Evaluation of Services) work to support the development of a national survey of the bereaved which would capture invaluable information about the quality of care provided to the deceased. The aim of this report is to adapt and test VOICES as a measure of the quality of end of life care as well as investigating whether recruitment strategy can impact upon response rates in VOICES surveys. It also hopes to provide guidance for the planning and execution of future VOICES surveys.”

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Palliative care for older people: better practices – WHO – 2011

Posted on August 4, 2011. Filed under: Palliative Care | Tags: |

Palliative care for older people: better practices – WHO – 2011

Edited by Sue Hall, Hristina Petkova, Agis D. Tsouros, Massimo Costantini and Irene J. Higginson
2011, viii + 59 pages
ISBN 978 92 890 0224 0

“Populations around the world are ageing and more people are living with the effects of serious chronic illness towards the end of life. This publication provides examples of better palliative care practices, from or relevant to the WHO European Region, that range from a whole health system perspective down to individual examples of better education or support in the community and elsewhere. While some examples remain to be fully evaluated, they will nevertheless help policy-makers, decision-makers, planners and multidisciplinary professionals to plan and support the most appropriate and effective services for the care and quality of life of older people.”

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National Palliative Care Consensus Statement and Call to Action – Palliative Care Australia – June 2011

Posted on July 5, 2011. Filed under: Palliative Care |

National Palliative Care Consensus Statement and Call to Action – Palliative Care Australia – June 2011

“This National Consensus Statement is a blueprint for action spanning a range of social and health professional issues related to palliative care in Australia. It was developed following a stakeholder forum convened by Palliative Care Australia (PCA) held on 26 May 2011 at Parliament House, Canberra, and represents the forum’s collective analysis, evaluation, and opinion. The National Consensus Statement complements the work undertaken by the Australian Government in developing the National Palliative Care Strategy 2010.”

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End of Life Care Patient Charter – RCN – June 2011

Posted on June 29, 2011. Filed under: Palliative Care | Tags: |

End of Life Care Patient Charter – Royal College of Nursing – June 2011

A charter for the care of people who are nearing the end of their life

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Strengthening palliative care: Policy and strategic directions 2011–2015. Draft for final consultation – Victoria, Department of Health – 23 May 2011

Posted on May 27, 2011. Filed under: Palliative Care |

Strengthening palliative care: Policy and strategic directions 2011–2015. Draft for final consultation – Victoria, Department of Health – 23 May 2011

“Summary
The Strengthening palliative care: Policy and strategic directions 2011–2015 will guide the work of palliative care services, consortia and government from 2011 to 2015. The actions outlined in this policy will equip specialist palliative care services in Victoria to meet growing demand for palliative care.”

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Headline findings from a survey of the public conducted on NCPC [National Council for Palliative Care] – 16 May 2011

Posted on May 20, 2011. Filed under: Palliative Care | Tags: , |

Headline findings from a survey of the public conducted on NCPC [National Council for Palliative Care] – 16 May 2011

Press release

“Death remains a taboo subject in Britain, according to new research commissioned by the Dying Matters Coalition. Although the majority of people think that talking about death is less of a taboo than it was 20 years ago, two-thirds of all people agree that people in Britain are uncomfortable discussing dying and death.

The research, which has been released to coincide with the second annual Dying Matters Awareness Week (16-22 May 2011) finds few people have discussed with their partner the type of funeral they want (33%), whether they have a will (33%) where they would like to die (16%) or the type of care and support they would want at the end of their lives (18%). Women are a lot more likely than men to have had discussions with their parents, but both men and women are more likely to have spoken with their partner than their parents – just one in four people have spoken to their parents about whether they have made a will and only 11% have discussed with them where they would like to die.”

Full data tables

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Capacity, care planning and advance care planning in life limiting illness – NHS National End of Life Care Programme – 17 May 2011

Posted on May 20, 2011. Filed under: Palliative Care | Tags: |

Capacity, care planning and advance care planning in life limiting illness – NHS National End of Life Care Programme – 17 May 2011
A Guide for Health and Social Care Staff

**updated version of Advance Care Planning: a guide for health and social care staff **
“This guide covers

the importance of assessing a person’s capacity to make particular decisions about their care and treatment and of acting in the best interests of those who are assessed as lacking capacity to make these decisions.
the differences and relationship between care planning and advance care planning.”

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Guidance for staff responsible for care after death (last offices) – NHS National Nurse Consultant Group (Palliative Care) – April 2011

Posted on April 14, 2011. Filed under: Nursing, Palliative Care | Tags: |

Guidance for staff responsible for care after death (last offices) – NHS National Nurse Consultant Group (Palliative Care)

Developed by the National End of Life Care Programme and National Nurse Consultant Group (Palliative Care)
The Royal College of Pathologists and the Royal College of Nursing

“The nurses’ role at the end of life extends beyond death to provide care for the deceased person and support to their family and carers. The physical care given by nurses following death in hospitals has traditionally been referred to as ‘last offices’. However, in this guidance we refer to ‘care after death’, a term more befitting of our multi-cultural society.”   …continues

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Planning for End of Life for People with Dementia – Alzheimer’s Australia – 4 April 2011

Posted on April 14, 2011. Filed under: Aged Care / Geriatrics, Palliative Care | Tags: |

Planning for End of Life for People with Dementia – Alzheimer’s Australia – 4 April 2011

Discussion paper for Alzheimer’s Australia by Professor Colleen Cartwright

“Planning for the end of life is critical yet often neglected. Research shows that people who have completed some form of advance care planning are more likely to receive end of life care more aligned to their wishes than those who have not, yet 49% of people have not completed any form of advance care planning.

Planning early for end of life is essential for people with dementia, yet most do not do it while they can still make their own decisions.” … continues

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Be Prepared: Reducing Nursing Home Transfers Near End of Life – California HealthCare Foundation – March 2011

Posted on March 8, 2011. Filed under: Aged Care / Geriatrics, Palliative Care |

Be Prepared: Reducing Nursing Home Transfers Near End of Life – California HealthCare Foundation – March 2011

“Nursing home residents too often are hospitalized during the last weeks and months of life, resulting in unnecessary suffering and the potential for increased health care costs.

A recent regional initiative, the PREPARED project, sought to reduce such transfers by improving advance care planning, including use of Physician Orders for Life Sustaining Treatment (POLST). The intervention included hospital-provided clinician educators assigned to nursing homes to offer education, role modeling, and coaching of key staff.

An evaluation showed a statistically significant increase in the nursing home as the site of death for residents who died and a modest reduction in hospitalizations from 9.6 per month per facility to 8.9. There was a 6 percentage point increase in family members’ overall rating of their dying loved one’s quality of care and a 13 percentage point decrease in the number of family members who thought that their dying loved one was not always treated with respect.

A number of factors were identified that contributed to progress in certain facilities, including:

Sustained administrative support and leadership;
Facility advance care planning champions and involved physicians;
A focus on quality improvement; and
Opportunities for resident and family education.”

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National Palliative Care Strategy – Supporting Australians to Live Well at the End of Life – released February 2011

Posted on February 10, 2011. Filed under: National Health Strategies, Palliative Care |

National Palliative Care Strategy – Supporting Australians to Live Well at the End of Life – released February 2011

ISBN: 978-1-74241-367-9
Online ISBN: 978-1-74241-368-6
Publications Number: D0115

4 goal areas

• Awareness and Understanding
• Appropriateness and Effectiveness
• Leadership and Governance
• Capacity and Capability.

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Talking About End of Life Care: right conversations, right people, right time – 27 January 2011

Posted on February 7, 2011. Filed under: Palliative Care | Tags: |

Talking About End of Life Care: right conversations, right people, right time – 27 January 2011

“National End of Life Care Programme

This is the final report from the communication skills pilot project, which funded pilot sites to explore training need, provision, strategy and sustainability. Service users and other partners also contributed to the project.

It celebrates the NEoLCP’s work in equipping our workforce with the confidence and competence to respectfully and compassionately care for individuals and their families towards the end of life.

The pilots carried out a training needs analysis, reviewed existing provision and benchmarked it against national competences. They then used a needs-based approach to develop new training plans. This report highlights the project’s findings and identifies key messages.”

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Bereavement care services: a synthesis of the literature – University of Nottingham, for Department of Health – 26 January 2011

Posted on January 28, 2011. Filed under: Palliative Care | Tags: , |

Bereavement care services: a synthesis of the literature – University of Nottingham, for Department of Health – 26 January 2011
Pages: 73

“This report sets out the findings of a literature review on bereavement services conducted by the University of Nottingham.  The review was commissioned to inform future work on bereavement care, as part of the implementation of the End of Life Care Strategy. “

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End of life care – achieving quality in hostels and for homeless people – UK National End of Life Care Programme – 8 December 2010

Posted on January 14, 2011. Filed under: Palliative Care | Tags: |

End of life care – achieving quality in hostels and for homeless people.
http://www.endoflifecareforadults.nhs.uk/news/all/neolcp-publishes-the-route-to-success-in-end-of-life-care-achieving-quality-in-hostels-and-for-homeless-people

Designed to provide a practical guide to support hostel staff in ensuring that people nearing the end of their life receive high quality end of life care, it includes:

Key considerations for delivery of end of life care
When to start thinking about end of life care
End of life care pathway
Step 1: Discussions as the end of life approaches
Step 2: Assessment, care planning and review
Step 3: Co-ordination of care
Step 4: Delivery of high quality care in different settings
Step 5: Care in the last days of life
Step 6: Care after death
Next steps
Useful resources

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Social care and hospital use at the end of life – Nuffield Trust – 8 December 2010

Posted on January 14, 2011. Filed under: Palliative Care | Tags: |

Social care and hospital use at the end of life – Nuffield Trust – 8 December 2010
Author: Martin Bardsley, Theo Georghiou, Jennifer Dixon

“Care of the dying can be seen as an indicator of the quality of care provided for all sick and vulnerable people. About half a million people in the UK die each year, and the quality of care they receive also affects a much larger number of relatives, carers and friends. Although the costs of this care are also high, there is a shortage of information about the care people receive at the end of life and major gaps in our understanding of what services are appropriate.

This briefing summarises a Nuffield Trust report to investigate the use and estimated costs of hospital and social care services for large groups of individuals at the end of their lives, in three PCT/local authority areas. We believe that this is the first time that such an estimate has been derived for large populations. This type of analysis is the first step to achieving better quality of care for the available resources.

The techniques used in this analysis mark a significant step forward in terms of providing a better understanding of health and social care services used by people at the end of life. However, the analysis is partial. The Nuffield Trust has therefore been commissioned by the National End of Life Care Intelligence Network to conduct a more detailed follow-up study. This will involve a wider range of local authorities, and an extended number of datasets. It will report in 2011.

This briefing forms part of the Trust’s work on the commissioning of health care. It will be of interest to policy-makers, commissioners and managers within health and social care, as well as academics with an interest in this area.”

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The transformative power of effective facilitation – practical steps to making a difference in end of life care – 2010

Posted on August 25, 2010. Filed under: Palliative Care | Tags: |

The transformative power of effective facilitation – practical steps to making a difference in end of life care

“Report of a conference to launch the National End of Life Care Programme Facilitators Network June 29th 2010, Mary Ward House, London.

This report highlights the launch of the facilitators network and the objectives and thoughts behind the development of the network. This report is aimed at end of life care facilitators who attended the event, those who were unable to attend and those who may be thinking of joining the network. The National End of Life Care Programme (NEoLCP) will also share the report with the Strategic Health Authority end of life care leads to promote the network and raise awareness of facilitators working within their region.”

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Variations in place of death in England: inequalities or appropriate consequences of age, gender and cause of death? – NHS National End of Life Care Programme – August 2010

Posted on August 20, 2010. Filed under: Palliative Care | Tags: , , |

Variations in place of death in England: inequalities or appropriate consequences of age, gender and cause of death? – NHS National End of Life Care Programme – August 2010

This report reveals big variations in the percentage of deaths that occur in hospital – both between the English regions and at a local authority level. It also shows that people on low incomes are more likely to die in hospital, with 62% of deaths amongst people in the most deprived quintile of the population occurring in hospital. Amongst the most affluent fifth of the population the figure is 55%. The report cautions however that these inequalities might reflect a greater incidence of diseases requiring hospital care at the terminal stage amongst people in lower socio-economic groups.

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National palliative care performance indicators: results of the 2008 performance indicator data collection – AIHW – 19 July 2010

Posted on July 20, 2010. Filed under: Palliative Care | Tags: |

National palliative care performance indicators: results of the 2008 performance indicator data collection – AIHW – 19 July 2010

“National palliative care performance indicators: results of the 2008 performance indicator data collection presents the findings of the fourth national collection of performance indicator data from Australia’s palliative care sector. The information collected provides information on the extent to which palliative care agencies have met the four national performance indicators that were developed based on the goals and objectives of the National Palliative Care Strategy. The report also presents information on changes to performance (as measured by these performance indicators) that have occurred between the 2008 survey and previous surveys.”

Authored by Australian Institute of Health and Welfare.

Published 19 July 2010; ISBN-13 978-1-74249-032-8; AIHW cat. no. HWI 106; 52pp

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The quality of death: ranking end-of-life care across the world – July 2010

Posted on July 16, 2010. Filed under: Palliative Care |

The Quality of Death: Ranking end-of-life care across the world – a report from the Economic Intelligence Unit of the Economist – July 2010

Commissioned by the Lien Foundations

“…the Economist Intelligence Unit was commissioned by the Lien Foundation, a Singaporean philanthropic organisation, to devise a ”Quality of Death” Index to rank countries according to their provision of end-of-life care. Overall rankings and the Index methodology are summarised in the first chapter of this report (see p11 for a table of the final scores and the appendix for a full explanation of the Index methodology). A detailed examination of the Index findings and country scores is also possible on the Quality of Death website .

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Treatment and care towards the end of life: good practice in decision making – General Medical Council [UK] – 20 May 2010

Posted on May 26, 2010. Filed under: Palliative Care | Tags: |

Treatment and care towards the end of life: good practice in decision making – General Medical Council [UK] – 20 May 2010

New guidance for doctors from the General Medical Council [UK]

Patients must be given the opportunity in advance to discuss what treatment and care they want towards the end of life, according to this guidance from the General Medical Council (GMC).

For the first time, the GMC has given doctors in the UK guidance on advance care planning for patients nearing the end of life, including how to manage advance requests and refusals of treatment. The guidance has been updated to reflect concern from patients that they would not receive the treatment and care they would want towards the end of life. It emphasises to doctors the importance of listening to patients and recording an advance care plan to help ensure that everyone involved in treating the patient can understand and follow their wishes.

Media release

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Canadian Cancer Statistics 2010, released by the Canadian Cancer Society – 19 May 2010

Posted on May 21, 2010. Filed under: Oncology, Palliative Care |

Canadian Cancer Statistics 2010, released by the Canadian Cancer Society – 19 May 2010

Featured special topic – end of life care

Media release – Dying cancer patients need more support

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Delivering better care at end of life: the next steps – The King’s Fund – 27 January 2010

Posted on January 28, 2010. Filed under: Palliative Care | Tags: |

Delivering better care at end of life: the next steps – The King’s Fund – 27 January 2010
Report from the Sir Roger Bannister Health Summit, Leeds Castle, 19–20 November 2009 Edited by: Rachael Addicott & Rebecca Ashton
ISBN: 978 1 85717 589 9

“Summary

The government’s End of Life Care Strategy set out to improve the care that patients receive at the end of their life and to give them meaningful choice about where they are cared for and where they die. Implementation of the strategy has proved challenging, however, for a number of reasons: death and dying remain taboo subjects; the number of people dying is rising, putting extra pressure on end-of-life care services; budgets are likely to be limited in the coming years.

To help those who have responsibility for implementing the strategy, The King’s Fund organised the Sir Roger Bannister Summit at Leeds Castle in November 2009 at which senior policy-makers, clinicians, managers, officials and academics could share the challenges and suggest practical solutions.

Delivering better care at end of life: the next steps includes papers given at the summit – covering issues including commissioning, hospice and hospital care, quality markers, challenges for providers – and an account of the debate generated. It identified 10 critical actions to help the successful implementation of the strategy. It should be invaluable for those seeking to improve the quality of the care offered to patients at the end of life.”

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End of life care manifesto 2010 – The National Council for Palliative Care UK – January 2010

Posted on January 13, 2010. Filed under: Palliative Care |

End of life care manifesto 2010 – The National Council for Palliative Care UK – January 2010

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Gap Analysis of Specialist Palliative Care in New Zealand: providing a national overview of hospice and hospital-based services – December 2009

Posted on December 30, 2009. Filed under: Palliative Care |

Gap Analysis of Specialist Palliative Care in New Zealand: providing a national overview of hospice and hospital-based services – December 2009

“Summary of publication

The purpose of the report was to determine how close hospice and hospital providers of specialist palliative care services were to meeting the new draft service specification for specialist palliative care. The gap analysis (or national stock take) confirmed the anecdotal evidence that there are wide variations in the provision of hospice and other specialist palliative care at both local and regional levels. Hospital services particularly are generally limited to nursing and medical services only. There are opportunities for sharing resources between services, such as between the hospice and the hospital-based palliative care service in the same region, to increase the level of access to specialist palliative care, particularly in terms of support for grief, loss and bereavement, for patients, families and whānau.”

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Guidelines for Syringe Driver Management in Palliative Care in New Zealand – July 2009

Posted on July 27, 2009. Filed under: Palliative Care, Pharmacy |

Guidelines for Syringe Driver Management in Palliative Care in New Zealand
Date of publication (online): July 2009

Summary of publication

“These guidelines provide information on syringe driver management in palliative care in New Zealand, thereby minimising practice errors and promoting patient safety. The guidelines have been adapted (with permission) from the Queensland Health Guidelines for Syringe Driver Management in Palliative Care and were developed in consultation with an expert multidisciplinary review panel. The guidelines are intended for health care practitioners in hospitals, hospices, aged care settings and the community.”

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Essence of Care: a consultation on a new benchmark on pain – UK

Posted on July 22, 2009. Filed under: Palliative Care | Tags: |

Essence of Care: a consultation on a new benchmark on pain

“Essence of Care is a structured system of benchmarks widely used in various health settings. A focus group made up of carers, patients and professionals have met to review the benchmarks and this has led to a proposed new benchmark for pain management. The Department of Health are now opening this up for wider consultation. A consultation has also been launched on the reviewed original benchmarks.”

Department of Health – publications

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Plan ahead: Document and share your health wishes with Google Health – US – 16 July 2009

Posted on July 20, 2009. Filed under: Palliative Care | Tags: , |

Plan ahead: Document and share your health wishes with Google Health Information below copied from the Google Health blog
16 July 2009

“Do you have medical records gathering dust in a pile somewhere? As a doctor and nurse on the Google Health team, we’ve both had a lot of experience working directly in the healthcare system, with all the bills, insurance forms and other paper documents that come with it. We know from firsthand experience how burdensome all of these documents can be and we would like to reduce the unnecessary use of paper in patient care. As a step in that direction, Google Health recently added a feature which allows patients to upload scanned paper documents to their Google Health profile for safe storage and easy sharing.

One of the most important documents you may want to store and share in Google Health is an “advance directive.” An advance directive allows you to determine your end-of-life wishes so that your family and doctor can honor them if you get sick and are unable to communicate. The decision to sign an advance directive is an important and personal one, and Google Health now makes it a little bit easier. Google Health is now working with a leading advance directive provider, Caring Connections, that provides a free, downloadable form customized for all 50 states. To complete your form, download it, print it out, complete it, scan it, and upload it to Google Health. Once you’ve uploaded the signed form, Google Health makes it easy to share it with your caregiver.

We hope someday we’ll move beyond paper, but until then Google Health can help you store your paper medical records electronically, including an advance directive, in one safe place.

Posted by Julie Wilner, R.N., Program Manager, Google Health & Roni Zeiger, M.D., Product Manager, Google Health”

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End of Life Care Strategy: Quality Markers and measures for end of life care – UK – 30 June 2009

Posted on July 1, 2009. Filed under: Clin Governance / Risk Mgmt / Quality, Palliative Care | Tags: |

End of Life Care Strategy: Quality Markers and measures for end of life care
Document type:      Guidance
Author:  UK Department of Health
Published date:      30 June 2009
Pages:      58
Full text of the Strategy

“The End of Life Care Strategy published in July 2008 included a commitment to publish Quality Markers for End of Life Care.

This was a response to the SHA Pathway Chairs for the NHS Next Stage Review, who identified the need for a national approach in order to raise the quality of care for people at the end of life. The SHA Pathway Chairs helped produce the consultation draft which was published in November 2008. This publication reflects the comments we received through the consultation.”

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End of life care – UK House of Commons, Public Account Committee report published 14 May 2009

Posted on May 18, 2009. Filed under: Palliative Care |

UK House of Commons, Public Accounts Committee
End of life care [report] pdf
Nineteenth Report of Session 2008–09

Report, together with formal minutes, oral and written evidence
Ordered by the House of Commons to be printed 30 March 2009

HC 99
Published on 14 May 2009
by authority of the House of Commons
London: The Stationery Office Limited
44p.

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Advanced care planning: national guideline – UK Royal College of Physicians February 2009

Posted on April 9, 2009. Filed under: Palliative Care | Tags: , |

Advance care planning: national guidelines.  Concise guidance to good practice

The aim of this guideline is to inform health and social care professionals on how best to manage advance care planning (ACP) in clinical practice. The guideline contains a number of recommendations, such as training for and implementation of ACP, when and with whom to consider having ACP discussions, the context and content of discussions, preparing ACP documents and cognitive impairment.
ISBN 978-1-86016-352-4

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