Just a little more time: rare cancers baseline report – Rare Cancers Australia – 17 March 2014
Extract from the executive summary:
“For those Australians with rare or less common cancers we have, for the most part, failed dismally. While it is true that we have made some excellent progress in common cancers over the last 20 years, survival rates in many rare cancers have only improved marginally if at all, our research funding into rare cancers remains disappointingly and disproportionately low, as does the money we spend on government funded treatments for these patients. It is hard to believe that in the 20 years from 1990 to 2009 with all the advances in medical science and technology, that we have achieved so little for this group of patients and their families.
This report calls on the Australian Government to take action for improving outcomes for rare and less common cancer patients, to review existing mechanisms and improve research, diagnostics and access to medicines for rare and less common cancers. Without targeted mechanisms specifically designed to address the prevention, diagnosis, and treatment of RLC cancers we cannot hope to have an impact on mortality or improve patient outcomes in the coming years.”