A stronger collective voice for people with dementia – Joseph Rowntree Foundation JRF – 24 October 2012

Posted on October 24, 2012. Filed under: Aged Care / Geriatrics | Tags: , |

A stronger collective voice for people with dementia – Joseph Rowntree Foundation JRF – 24 October 2012

“Can groups provide a stronger collective voice for people with dementia?

A growing number of people with dementia in the UK are becoming actively involved in groups to try to influence services and policies affecting people with dementia. The Dementia Engagement & Empowerment Project (DEEP) was a one-year investigation aiming to highlight groups and projects involving people with dementia. The report offers specific ways forward for organisations wishing to engage with people with dementia. This report found that:

  • There are only a small number of groups led by, or actively involving, people with dementia that are influencing services and policies.
  • ‘Influencing’ work includes national lobbying and meeting with government officials, local lobbying of services, media work, training and education, participating in advisory groups, awareness-raising, and speaking at events.
  • Most groups undertook influencing work alongside peer support and social activities, and were local and relatively informal.
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